does anyone have any ideas?
thanks
The second major form of syringomyelia occurs as a complication of trauma, meningitis, hemorrhage, a tumor, or arachnoiditis. Here, the syrinx or cyst develops in a segment of the spinal cord damaged by one of these conditions. The syrinx then starts to expand. This is sometimes referred to as noncommunicating syringomyelia. Symptoms may appear months or even years after the initial injury, starting with pain, weakness, and sensory impairment originating at the site of trauma.
The primary symptom of post-traumatic syringomyelia (often referred to using the abbreviation of PTS) is pain, which may spread upward from the site of injury. Symptoms, such as pain, numbness, weakness, and disruption in temperature sensation, may be limited to one side of the body. Syringomyelia can also adversely affect sweating, sexual function, and, later, bladder and bowel control. A typical cause of PTS would be a car accident or similar trauma involving a whip-lash injury.
What can make PTS difficult to diagnose is the fact that symptoms can often first appear long after the actual cause of the syrinx occurred, e.g. a car accident occurring and then the patient first experiencing PTS symptoms such as pain, loss of sensation, reduced ability on the skin to feel varying degrees of hot and cold, a number of months after car accident.
Some cases of syringomyelia are familial, although this is rare. In addition, one form of the disorder involves a part of the brain called the brainstem. The brainstem controls many of our vital functions, such as respiration and heartbeat. When syrinxes affect the brainstem, the condition is called syringobulbia
the above is a cut and paste I found which is what I think you have..I went through 3 years of drs thinking I was faking tons of pain meds, tests etc..they finally figured out my discs in neck was about gone I coulda wound up paralised..you I think have trauma induced nerve and bone damage you should benifit from seeing and consulting a Neuro-surgeon..not a gp not a nurologist got to the top dog a neurosurgeon will figure this out for you.
oh this cut and paste didnt explain to good what your issue is,,it means your spinal fluid is not flowing correctly you have a portion of spine thats too narrow and the fluid is flowing too slow and that is causing problems,,I really think it can only be cured by surgery.