mysterious issue ..help

[pleasebelieve]

I am exhausted. Trying so hard to keep my faith. I have seen over 30 different doctors and specialties and everyone says "there is nothing wrong" i have swollen lymph nodes all through my neck. (Not cancer) and slowly get bigger. Sever 10pain on the middle shoulder bone on back of my neck. And..pain in one spot on left back little below the middle area. All test have been done. Mri ct scan xray labs they say all is normal. Then i leave the dr and i am forgotten. Funny thing is if i let my pain go. I will be.bed bound. Severe pain in the top middle of my head. Its all sharp. Stabbing. Sometime will burn. Since no dr can get a dx i am without help and just living with pain. We have tried all sorts of different meds to control the pain. but The pain is so sharp by a simple turn. O
r i might move wrong. Its not continous its set off by the simple things and can last forever. I feel so left out of medical care. I hve expressed myself to doctors and just get told to goto someone else.

tSo i am alone and stumped. who can i get to take me seriously, listen to me and believe in me. i am use to being fit and involved with my kids life. i cant do anything. its been going on for almost three years. always getting worse. thank you for your time. p.s. i did get a lymph node removed it shows infection. but the infectio specialist found nothing. this is how i wastold no cancer. no surgerys in these areas at all.

[trixy71]

By any chance are you near a teaching hospital? If so, that might be the next step, they tend to have better luck finding/treating mysterious things. Its worth a shot. Hang in there, you will find someone who can help you, don't give up, just keep at it. Also have you been seen by a neurologist? That also might be a good place to try. Also there are things that sometimes don't show up on imaging scans, maybe an EMG nerve conduction study may find some answers for you. Good luck.

[evewisewoman]

Hi pleasebelieve,

Just finished reading your comments. I think it might not be a bad idea
to repost your comments on the " Chronic Pain Couch" forum.
On the forum are members who are in chronic pain. Perhaps someone
on this forum could have some suggestions. I belong to that forum too
as well as some other very friendly and supportive people. My mom
has chronic back pain which no doctor has been able to figure out
what the cause of the chronic pain is. She also has had numerous
MRI's, x-rays, KAT scans etc. So I believe you. Be well. Eve