another thing , we went to florida we were walking around the block, he passed out, had to call 911 , he spent two night in the hospital...MRI Brain scan, chest x ray, thyroid, the works , it showed nothing, only what we knew , that he has cervical spondolosis , but the CEA count is the prob. so we come back to Jamaica , then they decide to do Bone scan, and ct scan of the chest which showed the mass........why dont these doctors do the serious test first, why did they not start with the CT scan of the chest, they said the MRI would show everything, well it did not.....so now we wait again. ; Its awful
Hi
this life is hell sorry I took so long to get back to you but , it has been hard, the neuro surgeon will not do the surgery until he finds out why his CEA level is elevated, so we had to go do Bone scan, ct scan of the chest, this came back with a mass by the thyroid leading to the aorta, the oncologist is away until the 17th, I am so sorry for Owen , he is putting on a brave front and I also have to be strong.....so here we are at a standstill until tuesday, how is everyone doing?
keep bugging the doctors, someone HAS to help, go above there head to patient avocate or the head of the department or something. tell them you have no quality in your life. staying on oxy is not going to help in the long run. I know about the butt pain, are you sure its not partly siatica? they have to help you or go to another dr. tell them its been going on a year and nothing is helping and your in to much pain to work. I hope you get some answers soon. insist on an MRI to see what is going on. best of luck, my prayers are with you.
CAT
Hi
my husband is going thru the same thing, from september last year, he is in bad pain, in the neck and spinal area...and the doctors keep going in a circle....the oxycontin helped the pain, but its not available in Jamaica? what next?
I would like to Thank You for ever thing.It did help me,You told me more than my Doctor did.I'am 46 years old and got injury at work I been in pain for one year.Been to 6 Doctors and ever time you ask for help they say there not my Doctor.And my Boss would like me to go back to work.But I can not I have lots of pain.And i walk with a cane now because of my left leg and butt has lots of pain lol.Oh I;am a cook I do 12 to 16 hours a day on my legs.5 days a week, I would like to thank you again.I have to see my Doctor again on the 23/08 I hope he tells me something soon,Ever time you ask him something He say is not bad.It takes time to get better well is a year now . sin102
hi, I will tell you my experience, maybe it will help you. for 4-5 years I was haveing back pain, lower back, the past 2 years it was so bad I couldn't even put up a christmas tree. I remember sitting in the floor crying, and this past year, whatever the grandkids put on the tree, thats how it stayed. I got an mri which showed protrusion of disk L4-L5 and some minor nerve problems. that is what they said. they gave me the epidural injections and that was a joke. after the surgery was over the surgen told my husband there was more damage than the MRI showed. I understand the pain, it was unbearable. most of last summer I spent in bed. On Dec 20, 2007, I had a spinal fusion surgery. it was horriffic. the worst thing in my life, (part of the problem with it being such a bad experience was that I got put on fentanyl patches, which are 800x stronger than morphine, then had to go through withdrawals like an additic.) I am not in much pain now, but its not all gone, a little viocoden once in awhile is all I am taking. Its been 3 months now, but I am still VERY stiff and I have a very hard time walking for very long, I am wondering if I will ever be normal again. the drs will make you try everything else before surgery. it works, but it does NOT take away all the pain. and if you get a fusion, it puts more strain on other disks in your spine and makes more surgery later in life more possiable. I would not do it again unless I was so bad I had no quality in life left and I hope I don't ever have to go on the patch again. good luck to you, if you want to write me, you can at any time.
CAT