Brain, Pituitary and Skull Base Tumor Forum Expert Forum
Pineal Galnd Cyst/Tumor
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Pineal Galnd Cyst/Tumor

In 2001 after suffering from severe migraines, dizziness, and weight gain, they had found taht I had a pineal gland (cyst)(tumor)  My migraines have been unbearable.   After numerous Drs and nuerologists It's been closley wathced but nothing has ever been done.  IT has grown everyear since it is now 2013, and my general health has been gowing down hill.  I have issues with my thyroid, PCOS, fatty Liver, High Chole, and I have sleep issues, severe bumps all over my shins,and now diagnosed Fibromyalgia, I am on nerve blockeers and pain medicine.  My moods are horrible.  Some readings from my mris call it a cyst, others call it a tumor.    They say it looks non cancerous, but how do they know.  My vision is blurry, my headaches are no longer tolerable.  My sister had a small tumor removed after she was loosing  her vision only it was on her pituitary.  My father passed at the age of 38, from Brain Hemorage/anyerism.  Someone Please help, it seems that I always get as far as the nuerosurgeon, and then   they say we will keep and eye on it.  Well I am tired of feeling this way, I feel like I havethe severe flu for the past 2 years and it's only getting worseLooking for answers and hoefully resolutions.   Please help does anyone know anyone who has had surgery on  this type of tumor
Thanks,
1382849_tn?1337552730
Dear mindpap,

I will be glad to review your MRI free of charge.
If you are interested please send your films to:

(For Dr. Prevedello's revision)
410 W 10th avenue
N1011 Doan Hall,
Wexner Medical Center at The Ohio State University
Columbus, OH
43210

3 Comments
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I would seek the advise of a highly reputable endocrinologist. I mean the best you can find! It took me years to find a doc that would do more than "wait and see".
See if you can find a neuro endocrinologist.
Keep me posted!!
Jana
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Avatar_m_tn
Thanks Jana!
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