hi all
we have a group on medhelp of 44 women dealing with this disease, given its rarity, that is quite an achievement
zouzi gave the right link:
http://www.medhelp.org/forums/granulomatous-mastitis/show/707
GM is a very poorly understood disease with unknown cause and very complicated treatment unfortunately. Treatment with corticosteroids is often not very successful, methotrexate is often now used, either in conjunction with corticosteriod or alone. A large number of women have to resort to double mastectomy to achieve full healing. Tough disease, but there is hope and healing.
We have a great group with lots of support for anyone suffering with this, so please join us.
Cheers,
Jojo45