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Invasive Lobular Breast Cancer
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Invasive Lobular Breast Cancer

I just found out today that I have Invasive Lobular Breast Cancer.  Our plan is to do a double mastectomy then reconstructive surgery.  Do you know if chemotherapy is used for this type of cancer.  I had tubular cancer in this same breast in 1993. We did a lumpectomy and node removal back then.   I've only talked with the surgeon today and haven't talked with my cancer Dr.

I am doing research on the type of cancer I have . I know I can't have radiation because I already had it in this breast.  So I'm not sure if they do chemo with this situation.  Any information will be appreciated,
Thank you, Dee


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Avatar_n_tn
Hi Dee,
How are you doing?
Chemotherapy is used for invasive lobular carcinoma of the breast.  Fortunately, there are so many regimens available now that can be given to you.  Combination chemotherapy is appropriate for you.  Targeted therapy in the form of trastuzumab can be added to your chemotherapy provided you are positive for Her2neu.  You can ask your oncologist about this.
Regards.
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Dr. Dennis,
Thank you for the information you gave to me.  I will ask my doctor if I am positive for Her2neu.  I am so frightened about chemotherapy everyone I have ever know has lost their hair and been very sick.  I know there is a patch that comes out in the first of the year for nausea.  Have you heard anything about it and if so is there anyway we can get it in the states.
Thank you,
Dee
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Hi sweetie,

I'm so sorry you are going through this.  Where do you live that you were up 6 hours ago?  I hope you are getting adequate sleep.  If not, talk to your dr and find out what you can take to get adequate sleep.  I know you've been in the cancer boat before, and I can't imagine finding yourself here again.  Just know we've been all been in that early finding out there's cancer stage -- it's horrific.  I can tell you this part about chemo from my own experience.  It was the one thing I really didn't want to do. I was afraid of the feelings, the loss if hair, feeling ugly, being out of control of my life.  Then I talked myself into the fact that I had to walk through fire to get better.  There have been some tough times, but there have been times of grace through this process and the knowledge that God is present the people that care about me.

Hang in there.  Seek and destroy those cancer cells whereever you can find them.  Life goes on through chemo and life certainly goes on after chemo.

Chris
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Hi Chris,
  I wrote you a couple of times in the breast forum.  When you do read my post from last night I was having my first panic attack, I was alone, I had just read someone in the forum who was so uplifting and positive(that is usually me) I'm really never down and this has just hit me hard for some reason.  I have great faith in God and know He will see me through this and He will be by my side and send others like yourself to comfort and reassure me.  In advance before you read my post I am sorry.

I hope you are feeling better.  Where are you with your chemo?  Have you finished?  You are a wonderful person to give so much of yourself.  Believe it or not this is the first time I seen your comment.  The new way MH has things set up are a little confusing. However, I'm learning to find answers to post when I don't see them on my profile.

I don't get much sleep I am on Central Standard Time.  Some times I am up all night I don't care what I take I am up all night with pain.  My sciatic nerves in both legs gives me a lot of pain.  I take one Klonpin 2mg,one restoril 30mg, one soma 350mg and 2 sominex I take them at 9:00P.M.  and I'm lucky to get a few hours of sleep.  

This is from my pain management who doesn't know I have cancer at the moment.  I have an appointment to see him.

I am sorry to bother you with all the questions.  I thank God you are here for us and in some small way I hope I will be able to repay the comfort you give.

Thoughts and prayers,
Dinah  aka/Dee
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Avatar_f_tn
Hi Dee52,
My mother in law was diagnosed with invasive lobular carcinoma 3 mos ago.  She had a double mastectomy and then they just put her on arimidex to get the estrogen out of her system.  They did not do radiation treatments or chemotherapy.  However, I have wondered if it is because she is 75- I do believe age sometimes makes a difference on treatment plans. Her surgeon that did the double mastectomy talked about her probably having radiation and chemo. but the oncologist at MD Anderson said just take the arimidex.  I know hers was estrogen positive as well. You are in my prayers and God is there and in control- I always think about how God knows the number of hairs on our heads (no joke intended here but it is kinda funny all be it hair loss from chemo. is short lived)- how awesome is that!
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I can't have radiation because the cancer is in the same breast that I had cancer in 93.  I had a lumpectomy and node removal with 7 weeks of radiation.
  I'm not sure why they aren't giving your mother radiation or chemo.  it may be because of her age.  You may want to ask the doctor when she isn't around.  How did she do with the mastectomy?  I'm thinking about with the reconstructive surgery to have the flap procedure.  It will be more painful however it will be my fat in my breast...ugh how gross does that sound.  It is something to think about God knowing every hair in our head and then wham here comes chemo...another thing to think about what about the men that goes bald!  We know God can see beyond the baldness however, that was a good point you brought out.  Thanks for making me smile!
God Bless,
Dee
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Avatar_f_tn
My mother in law did great with the double mastectomy. She didn't even take pain pills past the second day out of surgery.  She is not doing reconstruction.  Part of my own story is that I will be doing a prophylactic bilateral mastectomy with re-construction in Nov.  I had a patient that showed me her reconstrction with a tram flap.  I kid you not if she had not told me what she had done I would NEVER have know n it.  Her surgical scars and etc. are barely visible and her reconstrcted breasts look fantastic! Unfortunately, I don't have enough fat to make a nice set of reconstructed ones.  Guess I'll be having the implants.  My younger sister had chemo last year for ovarian cancer and she just got done doing a tri-athelon.  She lost her hair but when it grew back is curly cute and twice as thick!  She loves it.  Let me know how you do.
God id good-
Lois
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Dee if yu lose your hair it will come back even more beautiful, don't worry about that....your beauty will shine thru like it does in your posts. Just get well and keep in touch. Madge
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Lois, I'm going to go on your forum to learn more about you.  I don't want to say something that isn't going on.  You have a lot going on in your family I will keep you all in my prayers!  I have just been reading about the different types of reconstruction to the breast...trying to find the best.  I heard the flap was I'm just so confused my plastic surgeon is suppose to call for me to come in so he can talk all options.  I wish that was a problem with me not having enough fat.(giggles)  My prayers are with you, your sister and your grandmother.  Keep me posted.
Thoughts and many prayers.
Dee
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Madge, Thank you for your sweet reply and for the support!  It means so much to me to have the support.  With my first breast cancer I wasn't scared even for a second however, I am very afraid with this one...I know it's much worse however, I know our Father in heaven will be by my side also.  I'm normally so brave...I thank God for my friends on MH because with the encouragement from all of you it gets me through the day.  I would never let my family know how scared I am.
Thank you all once again for your support and keep me posted.

Madge how are you doing?  Have you heard from your doctors?
Hugs,
Dee
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Avatar_f_tn
I am real good, I don't have much pain now, just a little tenderness if I over do.  You should not keep things from your family honey, they can help support you too, and in doing that it will perhaps help them too.  Keep in touch, and know that God is always near and he loves to hear our prayers. I know you will be ok, I feel that in my soul.
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I know you are right about keeping my feelings away from my family will only hurt them in the long run.  I was always the one that would hold the family together when we had a crisis.  I do suppose I need to turn that over to one of my older siblings for the time being
I am turning my fear into faith.  I feel so close to our HEAVENLY FATHER I know He will show me the way.  
Thank you for showing me how in the long run I would end up hurting my loved ones. God uses each person in His own way and He has sent you to me to show me I wasn't doing my family right.  I did have a sister come to see me today and she told me she knew behind my smile I was in torment and scared.
Thank you for everything,
Hugs, Dee
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