If you've never had the bone density scan done it's nothing but a super quick scan.
best wishes.
Than you for your replys I am now waiting for a date for a Bone Density Scan this week, I have a problem with the bone in my back, will let you know how it goes, Thank you all for your support xx
Thank you all for your comments and Kat yes I am off to my GP again on Monday so I will ask for a Vit D test, this is very helpful thank you. I had an xray two weeks ago and the doctor has called me back for that and I also showed some inflamation in my blood test.
I just want to get better for my daughters wedding in May, well I just pray for some improvement. I will let you know how things go
Thanks :-D
The pain was not just in my knees but also hands and back.
I do think, after hearing about this so often, that the Tamoxifen plays a part in the hand pain, and I had to have surgery for a very painful condition of what's called 'trigger finger' and where a finger gets stuck in a bent position and it's very painful to forcefully straighten out again.
KAT
My son had also been complaining of constant bone pain and I made him have a Vit D level test. It came back very low.
But with Breast cancer, this Vit D deficiency is so common that I do not understand why nobody is paying attention, and the bone pain that results often becomes so severe, and so painful, that it's ridicu;ous. As in my case, it can also lead to damage and breaking of bones, usually little pieces of bone dying.
Often, or more than often,also swelling of soft tissue around the joint, is involved.
Please do the test, and let us know so others can benefit from it.
KAT
I answer similar questions so often that I decided to just copy my last one.
by katarina777 , Mar 15, 2011 11:21PM
To: Gail58
The first thing I would do is have my Vit D level checked. (blood level) In the past few years I have had 2 episodes of pretty severe knee pain, and the first time the pain was excruciating, and what I had turned out to be osteonecrosis.
Thank God, my PCP was the only one who had the wisdom to check my vit D level and it was very, very low. With supplements, the condition healed by itself and left no traces.
This last time I told my oncologist I needed to have this test again and he was fairly unimpressed as I was already taking it. After the results came back, he immediately told me to double the dose and all symptoms once again have vanished.
I really do not believe most specialist take any of this seriously. The bone doctor I saw did not even mention the possibility that this could be vit. D related, and only that I would mostly need a knee replacement.
I mean, I myself would not believe this powerful connection either, but now I know what this can do.
The first episode happened a couple of months after I finished radiation, and before that I had chemo, and when the pain hit out od the nowhere and without any injury, I was also on the Tamoxifen and thought this was causing the pain.
I am not sure to what extent it was contributing, I mean the Tomoxifen, but I did not stop taking it, and still, my bone condition, and which was clearly visible on both MRI and bone scan, still got healed. I did have other nasty side effects from the Tamoxifen though.
Katrin
Chemo started it but the tamoxifen is the culprit now.
best wishes