BREAST CANCER COMMUNITY
So many questions b/f chemo w/high grade pending oncotype and lots of tests - HEL...

So many questions b/f chemo w/high grade pending oncotype and lots of tests - HELP ME

I am a 51 yr old female who had surgery on 5/5/11 for invasive ductal carcinoma - i had calcifications 2 years prior that were closely being watched as a biopsy could not be done based on location - at surgery Results show it was 3.0 cm diameter, high grade located close to anterior. superior and posterior margins - believed to be a stage 11B as there was a micrometastasis of 0.35mm in greatest dimensioon detected only by immunostaining (thoought to be clear at remval date of surgery) this was in sentinel lymph node #1 and none in #2 - Grade 3 - clear clean margins-  Nottingham score was 3 +3 +2 = 8 and patholic stage was pT2 pN1 mi pMX (what is this by the way??)  - ER Positve by 20% and Progesterone Negative 0% HER 2 1+ Negative (im told this means negative but need clarity here as well)

Saw medical oncolgist recommending Chemo (8 rounds of Adriamycin) and need more info which ill get June 10th - also to follow up w/ Radiation to breast and lymph node and most likely Tamoxifen tx
QUESTIONS
He ordered in THIS ORDER OF IMPORTANCE THESE tests
1)  A port to be placed near heart
2)  a PET SCAN
3)  CT Scan of Brain
4)  Heart Scan (MUGA)   (To see if heart is strong to receive Chemo apparently)
5)  ONCOTYPE DX Test (to see if benefits outweight the risks of chem0 thru reoccurence percentages)
When calling for the port my surgeon said "If hes doing an oncotype i recommend waiting for those results b/f scheduling port) - made sense - i also thought what about the heart scan results - i called him to discuss these confusions and his answer was regardless""You need this regardless" - So i thought then WHY THE TESTS YOU Said would show us more??
Im going for a second opinion to a place called FOXCHASE CANCER CENTER and theyve been truly amazing  - I have questions as to DES this make sense to anyone???? Fxchase thought it was confusing as so did I and my surgeon - Is the ncologist PANICKING B/C of my age of 51 yrs old and grade??  I dont see him til another 2 weeks so why the port first w/o test analyzations??  Makes me uncertain and with a call left unanswered for three days i know my decision to go to Foxchase is the right one -
CAN AN ONCOTYPE WITH A HIGH GRADE ne a low score by any chance ?? Usually not but can it??
Would any other Dr w/o seeing these test order the port first??  I will do what i have to do but perhaps seeing my age and grade type got this dr concerned (perhaps for my best interest but treating it aggressively w/o fully knowing perhapst) - he in new in the field and hungry to find the answers - thats why he was recommended - please all feedback will be appreciated and also has alot of people has severe reactions/adverse t chemo which are unrepairable??
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1 Comment
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962875_tn?1314213636
Hi,

With a high grade tumor the size of yours, plus the micrometastasis, chemo is usually pretty much a given, and sometimes a port is even installed at the time of lumpectomy (to avoid an additional surgery later), based just on the bioposy pathology report.

I don't think the first onco is necessarily panicking, but probably thinks you should have it if he believes chemo is a foregone conclusion. On the other hand, since you didn't get one at the time of lumpectomy, I don't see why there needs to be a rush for it now, if you prefer to wait until the full evaluation is completed.

The Mx you asked about simply means the possibility of distant mets cannot, or has not yet, been assessed.

Best wishes,
bluebutterfly
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