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1368538 tn?1294367401

bilatarel mastectomy w/tram flap reconstruction

NEED HELP IN OHIO  
                                                                                                                                                                      I HAVE THE BREAST CANCER GENE "BRACA II" AND I OPPTED 4 THE REMOVEAL OF MY BREAST (DUE TO WATCHING MY MOM BATTLE BREAST CANCER TWICE A 20% SERVIVAL THE 1st TIME AND 40% THE 2nd ) PLUS MANY OTHER FAMILY AND FRIENDS I HAD A BILATAREL MASTECTOMY W TRAM FLAP (TUMMY TUCK) RECONSTRUCTION!! I WAS SO EXCITED!! THE DR. WAS A MEMBER OF THE AMERICA CANCER SOCITY ON THE WEB ECT. ECT. BUT ON 5/10/2010 MY LIFE BEGAN TURN TO HELL ON 5/21 IT GOT WORSE I WAS COMPLETLY OUT OF IT FOR 4 DAYS (MOSTLY UNRESPONCIVE) I WAS IN THE HOSPITAL UNTILL THE 27th ON/OR AROUND THE  1st OF JUNE I WAS BACK IN THE HOSPITAL FOR A WK. ON THE 10th I WAS IN AGAIN 14 DAYS LATER I GOT OUT . BUT MY DR (QUIT/WAS FIRED) NOT SURE WHAT BUT HERE IS THE KICKER I HAVE 3 (THREE) OPEN WOUNDS BOTH BREAST AND MY TUMMY AND NOW HAVE NO DOCTOR AND NO DOCTOR WILL TOUCH ME. I STILL NEED MORE SURGERYS ON TOP OF THE 6 I HAVE ALREADY HAD ANY ONE HAVE ANY IDEAS


This discussion is related to Tram Flap failure.
11 Responses
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739091 tn?1300666027
I hate it when a woman gets brave enough to be proactive about her risks because of the BRCA mutation she carries and has the surgery only to be let down by the person doing the surgery. You may need to go to a wound center to get those open wounds treated. Possibly a wound vac.

People don't realize that a BRCA mutation can raise your risk to 85% when it comes to breast cancer. They don't realize that most breast cancers for BRCA positive people is triple negative which is very aggressive.

Please contact Dr. Frank DellaCroce in New Orleans and see what he can do to help you. www.breastcenter.com

He is known for his excellent tissue transfer reconstructions and his corrections of other doctors botched reconstructions. Please let us know how you're doing. Best wishes.
Helpful - 0
1368538 tn?1294367401
I DO HAVE THE WOUND VAC BUT HIS PARTNER SAYS TO LET IT HEAL BY ITSELF!!   I DONT UNDERSTAND YOUR 2nd PARAGRAPH WOULD YOU MIND A LITTLE MORE INFO
Helpful - 0
739091 tn?1300666027
Did you have an appointment with a genetic counselor before or after your BRCA testing? They have so much information to share. If you haven't done this I recommend you doing so. They will help you determine what surveillance would be best for you. Please seek a counselor out. You should be able to find them at any larger hospital or cancer center.

I also recommend you going to www.facingourrisk.org that specializes in BRCA information.

Best wishes to you.
Helpful - 0
739091 tn?1300666027
Here is some more information which in and of itself may not ALL pertain to you. This is why you need to see a genetic counselor. This is not all about breast cancer. It is also about a higher risk for other cancers as well. Your specific mutation will give a counselor more insight into what you need to be vigilant on.

Here is some scientific info for you....

Certain variations of the BRCA2 gene cause an increased risk for breast cancer. Researchers have identified hundreds of mutations in the BRCA2 gene, many of which cause an increased risk of cancer. BRCA2 mutations are usually insertions or deletions of a small number of DNA base pairs (the building material of chromosomes) in the gene. As a result of these mutations, the protein product of the BRCA2 gene is abnormal and does not function properly. Researchers believe that the defective BRCA2 protein is unable to help fix mutations that occur in other genes. As a result, mutations build up and can cause cells to divide in an uncontrolled way and form a tumor.

People who have two mutated copies of the BRCA2 gene have one type of Fanconi anemia. This condition is caused by extremely reduced levels of the BRCA2 protein in cells, which allows the accumulation of damaged DNA. Patients with Fanconi anemia are prone to several types of leukemia (a type of blood cell cancer); solid tumors, particularly of the head, neck, skin, and reproductive organs; and bone marrow suppression (reduced blood cell production that leads to anemia). A pathogenic mutation almost anywhere in a model pathway for DNA double strand break repair containing BRCA1 and BRCA2 greatly increases the risks for a subgroup of lymphomas and leukemia.

In addition to breast cancer in men and women, mutations in BRCA2 also lead to an increased risk of ovarian, Fallopian tube, prostate, and pancreatic cancers, as well as malignant melanoma. In some studies, mutations in the central part of the gene have been associated with a higher risk of ovarian cancer and a lower risk of prostate cancer than mutations in other parts of the gene. Several other types of cancer have also been seen in certain families with BRCA2 mutations.

Helpful - 0
1368538 tn?1294367401
THANK YOU FOR THE INFO!!! NO I NEVER WENT TO A genetic counselor and you have gave me info i didnt know my fear of cancer over road my commen sence i really need to do more resurch now i am in a pickle i have found alot of people in some what the same situation now i have to wk hard to find the right answer to my problems  thank you again  air
Helpful - 0
739091 tn?1300666027
You're welcome.

Take care of yourself and take the time to heal.

Please let us know how you're doing.
Helpful - 0
1368538 tn?1294367401
trying to it just really stinks that i at 38 had to move BACK IN WITH MOM & DAD because i cant take care of my self and i cant climb my stairs !! i will keep you up dated    thank you air
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739091 tn?1300666027
I'm glad they are there to help you. It's ok :)
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1368538 tn?1294367401
the hospital is kissing my bottom giving me gas cards found me a new dr call multipule times a day i guess they think i have ground to sue
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739091 tn?1300666027
Watch out for lipstick on da buttox! LOL
Helpful - 0
1119363 tn?1330355440
You may want to check out a different hospital and get another opinion.  I have heard many good things about James Cancer Hospital in Columbus at Ohio State.  I hope things get steadily better for you.
Helpful - 0
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