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Re-Excision Worries - PLEASE HELP ANSWER

Just had a lumpectomy three days ago.  Two out of six borders were positive for cancer.  I have DCIS grade three.  I am only 37 but I am not attached to my breasts by no means.  I don't want to continue surgery after surgery.  At what point will the durgeon suggest masectomy?  How many borders need to come back poritive before they do?  Anyhow, my main question is after having the biopsy and lumpectomy by cutting the duct (which is a round tube - ??? ) isn't the cancer now open to spreading?
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Avatar universal
I understand your desire to remove all traces, but be cautious that just because insurance will pay for reconstruction it doesn't mean that you'll like the results. I had a mastectomy with tram flap reconstruction.  It wasn't a choice for me because of the size and nipple involvement of the cancer. Even with reconstruction mine are not the same shape. My surgeon and I are of the opinion that all margins need to be cancer free or you have left something behind. If you can get clear margins with a second lumpectomy, it would certainly be less stressful on your body.
Be sure your plastic surgeon shows you results of previous surgeries he has done.  Even the very best surgeon isn't able to make make it look like new.  Also, with mastectomy you will loose all tactile sensation and the nipple. I also had chemo based upon the number of cancerous lymph nodes I had. Did they check your lymph nodes?
Good Luck!
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Avatar universal
Hi Norah!

They mad a mistake on my margins being 2/6 positive it is actually 4/6 positive for cancer.  I have decided to go ahead and do a masectomy because you don't have to have chemo or radiation plus insurance has to pay for reconstruction on both breasts to make them look alike.  I haven't set a date yet but possibly within two weeks.  I have size "D" breasts to and my doctor wants to try another lumpectomy in hopes to get it all.  I asked about masectomy due to all the research I have read and it ultimately comes down to my decisions.  I think another lumpectomy just adds more surgery on my problem.  I just want all the cancer out.  DCIS can become invasive I think we were fortunate enough to find it early.  I hope your radiation goes well.
Dana

    
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Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
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Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
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Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
Avatar universal
I guess it depends on your doctor how to interpret the DCIS. Here is what my surgeon says. DCIS means the cancer is still inside the duct and has not gone outside of it so it is not invasive. It could be microscopic invasive. That the pathology report should show. Mine was not and I am so grateful to that. The do not do TNM or Ki-67 or HER2 test for DCIS because of the nature of this type of cancer. But they do ER and PR and unfortunately mine was negative. So talking Tamoxifen would not help me. My surgeon believes that all the borders or margins should be clean of cancer more than 2 mm to the edge. My infected area was 6x5.2x2 cm, pretty large. In one margin the cancer was less than of 1mm far from the edge. So I had second surgery. My surgeon opened up the old excision for the second surgery. I was going to have second lumpectomy 3 weeks after the first one but since I had a planned vacation she let me go on vacation so I did it 1.5 months later. Fist one came out nice and clean but after the second the scar looks ugly and I had hypodermic reaction. My breast was red and itchy so I had to wait another month that happened because my area was too big. But I have big breasts, D size, and now after two lumpectomy my left breast is smaller that right. My doctor had to cut behind my nipple so my nipple is gone inside. I am thinking if this bothers me later I may do a plastic surgery to fix it. See I am not married and don’t have a boyfriend at this moment either. I am starting the radiation tonight. I have to go there everyday for 33 times. As I see I was dying to talk to some one who was going through this. So ask me whatever you want. Norah
Helpful - 0
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