thoughts on bc and IBC

[katarina777]

This is not a question  but a statement.

There are seven different types of breast cancer, did you know that? And one of them is IBC. Now, as soon as you mention a concern about having IBC on the expert forum and/or elsewhere, the first thing you will hear that IBC is a very rare bc...meaning, that it most likely does not apply to you.

But that is not true! IBC is not that rare of a bc at all. If I have it, ot cannot be that rare. if my neighbor's sister has it, it cannot ne so rare. if the ladt I sang with in the choir has it, it cannot be so rare. If the only political writer who ever really stood out for me, and I even heard her give a talk where I live, just died from it, it cannot be so rare. if my radiation nurse just told me it's not rare than it cannot be so rare.

OK, that's all for today. Katrin

[SueYoung55]

That seems like a lot of people in a small area that have it at the same time... And so if it's rare the odds of that many people in a small community make me wonder if there is something there in the community... maybe causing it? Kat, I don't think it is so rare, but I do think it's not understood or diagnosed properly. I think if all the women who had IBC were diagnosed properly we'd see much higher numbers. A lot of doctors don't even know what it looks like!

I'm glad you're getting another opinion my friend.

[iam1butterfly]

something to definitely think about... thanks for the insights!