Solutions .. not just watching and waiting

I was diagnosed with FAP in May 2006, I underwent a complete hysterectomy and colectomy in June 2006.  At that time there were abnormal cells forming but no actual malignacies.  In June of 2007 I have a giant agressive Desmoid (paraspinal tumor) that was growing up against my spine removed (it was huge) again no "malignancies" but there were cells outside the margin leaving the real possibilty that it would return.  In December 2007 they discovered a small desmoid tumor on the outside on my Jpouch but decided to leave it alone for now.  I have had several more FAP polyps removed from my colon that had they had to burn the conective tissue. Then in April 2008 I had another desmoid tumor removed from my ankel that grew on the sheth of the akilies (achilles) tendon (right side) and now .. after a recent onset of breast discharge .. they have found what appears to be a "6mm complex cyst or polpy with mural node" or it could be another desmoid in my right breast at 12 o'clock.  Other than trying suldinac no of my doctors have offered me any type of treatments other than surgery.  I am due to see yet another surgeon on Tuesday.  Is there any one who can truely help me I am only 35 yrs old and many years of "surgery" ahead of me ...