Chemistry Project

this is a very long story short.
My nephew (2 1/2 yoa) was diagnosed with cp after dr.'s were unable to determine exactly what is wrong. at six months, sean was missing milestones, low motor skills, lack of muscle tone in the trunk. does not walk/crawl/talk unable to sit without assistance. underwent every test eeg, mri, ekg, spinal tap, eye biopsy. etc. everything and everything has been tested for and all tests have come back inconclusive. ( cp diagnosis given so that he would be able to get assistance) Sean started having seizures at 2. was put on medication. anti-seizure medicine dose kept on having to be increased as sean kept having seizure after seizure. along with the other multitude of drugs, it seemed he was in terrible pain (possible upper gi/lower gi) and had to go to the hospital. has been in the hospital now for 8 days. anti-seiure medicine has been changed numerous times, loading doses and effects of coming off of other drugs it seems as if he is a chemistry project. all the while, dr.'s scratching their heads wondering exactly what is going on. hes been on trileptol, depacote, myralax for constipation, now on phenabarbatol, adavin was required so that he could get sleep. terribly sleep deprived and uncomfortable.
my question is.
do dr.'s reach out to other dr.'s when they are out of ideas? is there a forum they can go. is this the unfortunate circumstances that must occur so that they can find the right mixture of drugs?
is there anything that my family could do to get this kid some comfort, stop the seizures and at least live a somewhat life of quality.
not asking for diagnosis. asking for direction.

[Marguitalein]

Hi everyone,

I am a mother of a 11years old son. Since he was born, he is suffering paraparesis, a partial paralysis affecting the lower limbs.

We heard about the method of Dr. Ulzibat, and we decided to do the intervention one year ago. And I have to say how glad we are, with the successful results. Now he does many things, he couldn’t do before, like ride an exercise cycle or walk by himself (with a little help of a walking stick).

There is more information about this technique on the website: http://www.*******.**/ulzibat_en/welcome.html

I hope this helps!