My daughter has Cerebal Palsy and recently I joined a support group. A question was brought up in a discussion that I found interesting, but difficult to answer. A member of our support group had asked
"What are Caregiving services provided by a caregiver v. services provided “normally” by parent." Being Makayla is my only child i have never had the luxury of "normal parenting." We are meeting again tonight and I would like to give some feedback to the parent (whom child also has CP).
Bathing, feeding, dressing until school age
Diapering until age 2-3
Doctor visits: (well child visits)
Birth-12 months: 7-10 visits
12-24 months: 4-6
2-3 years: 2-3
3-5 years: 2-3
5-18 years: 1-2
The 'average' child will see the doctor an additional 2-3 times per year for 'sick visits'
"Ballet/gymnastics/karate/soccer/baseball" can all be considered simillar activites to physical/occupational/speech therapies...the biggest difference is therapy is covered by medical plans, social activities are not.
Parenting a CP child additionally involves:
Bathing, feeding, dressing WELL beyond 'standard' development, often well into adulthood.
Diapering WELL beyond 'standard' development, often into adulthood
Medication administration beyond the 'daily vitamin'. Often in an inconventional manner (G-Tube)
Special preparation of foods (formula mixed with pureed table foods/baby foods)
Doctor visits often are more than double the 'normal'
Hospitalizations/surgeries more than double (often triple) the 'normal' (even counting an appendectomy and tonsilectomy as 'standard')
Frequent visits to the school for conferences (above the typical 1-2 parent-teacher conferences)
Special travel arrangements
Special home/vehicle modifications
"Planned" grocery shopping (while there is someone else to care for the child with CP, additional time required to accomodate difficulty walking, etc.)
These are just the few I have come up with off the top of my head. My son was a spastic quad who lived with me (at home) until age 17 years/10 months, when he moved in with Jesus.
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