My daughter has Cerebal Palsy and recently I joined a support group. A question was brought up in a discussion that I found interesting, but difficult to answer. A member of our support group had asked
"What are Caregiving services provided by a caregiver v. services provided “normally” by parent." Being Makayla is my only child i have never had the luxury of "normal parenting." We are meeting again tonight and I would like to give some feedback to the parent (whom child also has CP).
Bathing, feeding, dressing until school age
Diapering until age 2-3
Doctor visits: (well child visits)
Birth-12 months: 7-10 visits
12-24 months: 4-6
2-3 years: 2-3
3-5 years: 2-3
5-18 years: 1-2
The 'average' child will see the doctor an additional 2-3 times per year for 'sick visits'
"Ballet/gymnastics/karate/soccer/baseball" can all be considered simillar activites to physical/occupational/speech therapies...the biggest difference is therapy is covered by medical plans, social activities are not.
Parenting a CP child additionally involves:
Bathing, feeding, dressing WELL beyond 'standard' development, often well into adulthood.
Diapering WELL beyond 'standard' development, often into adulthood
Medication administration beyond the 'daily vitamin'. Often in an inconventional manner (G-Tube)
Special preparation of foods (formula mixed with pureed table foods/baby foods)
Doctor visits often are more than double the 'normal'
Hospitalizations/surgeries more than double (often triple) the 'normal' (even counting an appendectomy and tonsilectomy as 'standard')
Frequent visits to the school for conferences (above the typical 1-2 parent-teacher conferences)
Special travel arrangements
Special home/vehicle modifications
"Planned" grocery shopping (while there is someone else to care for the child with CP, additional time required to accomodate difficulty walking, etc.)
These are just the few I have come up with off the top of my head. My son was a spastic quad who lived with me (at home) until age 17 years/10 months, when he moved in with Jesus.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.