This forum is an un-mediated, patient-to-patient forum for questions and support regarding
Crohn’s Disease and
Ulcerative Colitis issues such as: Abdominal Pain, Arthritis, Bleeding (Rectal), Blockage (Intestinal), Delayed Development (Children), Diagnosis, Diarrhea, Fissures, Gall Stones, Growth - Stunted (Children),
Kidney Stones, Living With and Managing Crohn’s, Malnutrition, Medications – Drugs, Nutrition, Pregnancy, Protein Deficiency, Research, Skin Problems, Stress, Surgery, Symptoms, Tests, Treatments, Ulcerations – Sores, Weight Loss
Liz.
Also be aware of another long term effect of steroids - thinning of the bones. I was on prednisone for some 30+ yrs, until I found methotrexate was being used in the USA nd begged my gastro to prescribe it off licence. The steroids significantly depleted my bone mass and after a recent DEXA bone density scan I was put on a bisphosphonate, Alendronic Acid, once weekly, plus Calcichew/Vit.D.to strengthen my bones. The sooner you can get off steroids and on to some long term immuno-suppressant to keep the Crohn's in remission, the better. Steroids still have their occasional use to bring a flare under control, but I have found being on methotrexate for 7 yrs, I don't have flares anymore, which is really good news, and my weight at 112 lbs is normal. My gastro will not now prescribe steroids for me, as I got steroid induced psychosis when dx with breast cancer - and that was one nightmare I never wish to have again.
You do need to look after yourself when having Crohn's - have you had your B12 tested yet? If the Crohn's is in the terminal ileum, you may not be able to absorb B12 and could need monthly injections, as I have.
Good luck and hope you stay in remission.
Liz.