I have had Crohn's disease for about 3 years and I am having problems with vomiting and I don't know what to do!! If you have any advice please help, I feel lost! I have some problems swallowing and I frequently feel like there is something in my throat ready to come up. I was vomiting almost every night for about two weeks I then felt a little better and it only occurred every couple of days. Well right now I can't hold anything down. I'm afraid to eat, but I am hungry. I am now starting my days vomiting, sometime in the first couple of hours I wake up. I also started vomiting more than once a day. I went to the dr. last week with my son (mon.) I weighed 149. Ttoday we went back for a med check for him and I weigh 139 (wed) I tried for a couple of years after the last steroids to lose weight but couldn't do it. So no its not normal. I have nausea and vomiting and I can't sleep at night. Any advice..............PLEASE HELP!
Hi - can only suggest you see a gastro soon and perhaps have an upper endoscopy, and/or small bowel follow through to check for any obstructions which may be causing the vomiting and swallowing problems.What meds are you on for Crohn's? Azathioprine made me vomit and have diarrhea at the same time - I only took it for 2 days and was so ill a doctor had to come to my home - he gave me an anti-nausea shot and advised me to stop the drug immediately. Since then I have been on methotrexate injections weekly and doing fine.
Sudden weight loss of that order really needs to be addressed quickly, as you will be become malnourished.
Liz in Cornwall,England.
Thanks for the advice. I am taking Asacol right now. I took Azathiorine before and ya' I didn't care for it. Please keep in touch, its great talking to people who understand what I'm dealing with and who understand crohns. The closest support group to me is about 2 hours away And my poor husband and kids have never met anyone other than myself who has had crohns. We are still learning so much. Thanks for your advice, its much appreciated!
Hi there - not sure if I had Asacol, had so many different drugs over the past 38 yrs, as well as 30+ yrs of steroids - a no no now, but that was the only drug available to bring a flare into remission in those days. IBD drugs have come on in leaps and bounds in recent years, and although I am very stable on methotrexate there are some much newer drugs, anti-TNF biologic therapies, like Humira, Cimzia, Tysabril and Infliximab which gives one hope for the future.I don't know where you live, but believe these drugs are now available in the US but are still being trialled in the UK.
My gastro said he has never known anyone tolerate methotrexate for 7 years without serious liver side effects, but guess I have always confounded general medical issues - didn't "present" normally with Crohn's - no pain, just severe diarrhea and weight loss, and when I got breast cancer 5 yrs ago, I had no palpable lump. It was found on a regular 3 yrly mammo, which is all we get here in England with our socialised health service. If I had known what I know now, I would have had private mammos in the intervening years, and perhaps the cancer would not have spread to my lymph nodes. Being a glass half full person, I try and find something positive in each and every day now, rather than dwelling on the past, or what may happen in the future. I do my research, am able to talk articulately to my doctors, and just so pleased to be alive, even with a somewhat curtailed lifestyle.
Hope you get some relief soon for your symptoms - if I can help in any further way, just let me know.
Hi again, just had a thought that may help you. When I was on FEC chemo for breast cancer, I was very sick (vomiting and diarrhea) and couldn't even eat a mouthful of home made vegetable soup with the solids strained out without rushing to the loo. My Oncologist prescribed a small daily dose of dexamethasone (a steroid) and got the hospital to send me a huge carton of Fortijuice - a vitamin and mineral juice type drink - 9 different flavours, all yucky, but I had to have some nourishment to stay alive. Each carton had 300 cals and I had to sip 3 cartons a day. Did the trick!
I also had bad nausea, and found that any drink with ginger in it did quell it somewhat. I seemed to have drunk gallons of non alcoholic ginger beer (cloudy and fizzy) and ginger ale (clear and fizzy), plus the occasional treat of Stone's Green Ginger wine - slightly alcoholic, topped up with ice and ginger ale. These drinks stopped me from becoming dehydrated. I did lose some 28 lbs during the 4 months of FEC chemo, but have put it back on thankfully and am steady at 112 lbs. perfect for my small frame and height.
Just a thought - many of my bc sisters have also found ginger very helpful in dealing with constant nausea.
Thank you so much. Your comments prompted me to get myself to the dr. I feel so much better. I am able to eat (with limitations) but I am holding my food down. I haven't had any vomiting and very little nausea. I am still have a lot of joint pain and I need to go see the doc again re: that symptom. Do you suggest any meds with little side effects. The doc gave me percocet for the pain but that isn't working so well. I didn't want to go the standard route of steroids to cure the flair up and thankfully the doc is treating my symptoms individually.
I hope you are doing well, I'm so happy to have found a crohns friends with the same "happy to be alive" feeling that I have.
I feel good on this forum being able to talk about my disease without feeling like I'm complaining. My husband says I never tell him when I'm not feeling well. But I'm so happy to be on this earth with my children that I don't like to complain about my crohns. thanks for all the advice.
Hi - good to hear you are feeling a tad better and eating a little.
Not sure which meds you want advice on - I take, on rising, one codeine phosphate (helps with the lower abdomen pain), one imodium to slow down the motility, one folic acid (necessary when taking methotrexate) and inject myself with 12.5mg of methotrexate weekly. (I take other meds for breast cancer and osteopenia). Mtx can be very toxic to the liver especially, but I have monthly blood tests and am tolerating it well. I don't feel I have side effects at all from mtx, but have had to stop my bc med, Arimidex, which has caused severe joint pains (hips,hands & feet). Stopped 4 weeks ago and the pain has diminished somewhat. Seeing GP 28th May for referral to a new Oncologist as mine retired last year.
You are right to steer clear of steroids. When I was dx in 1970, the dark ages as far as Crohn's was concerned, the only med to bring a flare into remission was prednisone, and the thinking then was it would keep one in remission, which has now been proven to be inaccurate. I was on steroids, varying amounts, for 30 yrs and this has played havoc with my bone density, which is classed osteopenic after various DEXA scans. I take alendronic acid (a bisphosphonate) weekly, and daily Calcichew/Vit.D to strengthen my bones and prevent further loss. Nobody told me all those years ago that steroids did this, perhaps they didn't know, but even if they had, there was no alternative to steroids.
Happily, there are so many new drugs now for Crohn's, it seems to be a question of trial and error to find one that keeps you in remission. Guess I discovered the holy grail when I found mtx on the internet and badgered my then gastro to prescribe it off licence. It is still not licensed in England for Crohn's as the mfrs feel there are too few patients to make the licensing costs worthwhile.
Are you on an immuno-suppressant? I remember some years ago when the Crohn's & Colitis Foundation of America (CCFA) had a website where questions were answered foc by a retired gastroenterologist, Dr. Eugene May. That forum is now defunct, due to legal problems, diagnosing/prescribing over the net. However, Dr. May did say that Crohn's patients should always be on an immuno-suppressant (like mtx), because the disease is incurable. I have not had a flare since taking mtx, except for a bad one when having FEC chemo for breast cancer and had to stop the mtx.
Take care Li - always happy to share my own experiences with you if I can help at all.
Im in the same boat!! I wake up vomiting and cant hold anything down.... When its that sever it lasts about 2 weeks and then I'll go down to 2-3 times a week. Even if i just have some water in the morning I might vomit. I'm currently on pentasa, and going to start predisone in July. Im VERY nervous. I rather vomit then go threw all the side effects I've heard of!!! But vomiting is affecting my daily life. I think its been about 5 days since I last threw up and thats the longest of gone since probably November. Now its coming out the other end (I think is worse) Im going any where from 4-10 times a day and its not nice! So I dont think theres much you can do. Its just living with crohns!! Ive tried changing how I eat and even that hasnt made a difference. If you find anything that helps please let me know!!
I've had Crohn's for 18 years, and I've had my share of meds. Prednizone, Sulfasalazine (Azulfidine), and more recently ENTOCORT EC (a nonsystemic corticosteroid)- basically works like a steroid without going into the bloodstream, so it has very limited side effects.
My Crohn's has always been upper track, especially in the stomach. If my stomach is upset with stress, booze, or too much acid I get horrible stomach pains and usually vomit and dont eat for several days. My health insurace decided to stop covering my medicine for heart burn, Protonix, they want me to use over the counter digestive band aides. This stresses me out, so I get sick.
I also manage my Crohn's with Canabis. When I first started smoking, my major symptom-appetite loss all but disappeared.
Then I was able to start looking at other supplements and how to treat Crohn's with better eating.
No more red meat, especially red meat that is fed with corn- this means no fast food, no mystery meat!
I had an almost immediate health turn around after making this change.
No more corn! Especially processed corn, it destroys your insides by throwing off the natural fatty acid balance. Supplement with fish oil to help with this.
When your DR prescribes antibiotics, make sure to take Probiotics to increase healthy micro-flora.
Find out where you need nutrients and supplement wisely.
Exercise exercise exercise!
Seek counseling and find others who have the same troubles and talk about it. Better to get it out than hold in in your stomach!
I am a 25 year old female. I was diagnosed with Ulcerative Colitis almost a year ago after having a bad attack after pizza one weekend that never went away. It took about 3 months of extreme pain, biopsys, barium tests, and a colonoscopy to find out what I was sick with. I spent 3 months off of work resting at home because I became so sick and malnourishment and too many trips to the bathroom to count. The pain I experienced was horrible. I would get bundled over with abdomal pain and just start crying in front of my customers due to the insane pain. I was put on my first treatment of ENTOCORT EC for 4 months along with Protonix for the heartburn, and another pill for the nausea. I was able to return to work after 3 months but was still feeling very ill. Its been almost a year and I am not healing as suspected so I am on my second round of treatment with Entocort and protonix. I am struggling to find out what my body can eat and what it cant. I am still throwing up a few days in a row in the mornings no matter what it is that I eat and It seems that when I start to feel ill it last about a week. Everyday is a different story and that is frustrating in itself. This has taken a toll on my normal cheery self and the steroids give me horrible side effects including: depression, insomnia, weight gain, sweats, nausea, etc. The depression is the worst, I feel very angry that at 24 years old I have been handed this card and I am not able to live the life of a normal 25 year old right now. Its going to take some time to get use to the idea but I believe everything happens for a reason and we arent given more than we can handle... most of the time. I wish the best of luck to everyone and Its not an easy journey but you are a stronger person for doing it.
Hi, my boyfriend got diagnosed with Crohn's disease last year and has been hospitalized around 6 times. He has been on a few different medications and all seem to do NOTHING. He has now been throwing for the last 2 days, trying to only eat what the Dr. told him (soup broth, ginger ale & crackers). The interesting thing is he isn't throwing up any food, its all acid & the last 2 days its been just about every 2 hours. He's taking 6mp right now & refuses to take the nausea meds cause it gives him a horrible migraine. Is there something the Dr. is missing, not giving him, or any other medications out there that work better in these cases?
If so I would greatly appreciate some advice. Thank You!
I thought I would let some people know what my experiences were. I have Ulcerative colitis, and really from the start (3 - 4 years) i have had constant morning nausea. To be 100% honest, I get nausea and dry reaching / vommiting, but it is almost always when I get up, and before I eat, normally in the shower i have 5 - 10 mins of dry reaching. It is not effected by bowel movements, i.e I have not gone to the toilet or even after I still get it.
I changed my meds from salfa to mesaline and that made a 10% difference, certainly not signifant but enough to offer a little relief.
I have not found a solution to preventing something like this, and again being honest its something that I have almost gotten used to, its not something that I like to have to go through every morning, nor is it nice for my partner to listen to, but I certainly am getting used to it, and not eating before makes it a little easier, if i was to have breakfast then be sick, i would not be able to handle it, so I normally don't eat breakfast.
Sorry its not a solution, rather another perspective.
Just wondering if ant fellow crohnies out there have had kidney trouble. Like stones, chronic uti - bladder-kidney infections, urinating up to 20 times aday everyday? if anyone has info or exprience please let me know.
Have any of you, who have problems with vomiting, tried this
Magnesium is not well absorbed if small intestine is affected, and deficiency can cause many problems.
Magnesium can be absorbed trough skin and this may help. I'm having problems with absorbtion (just muscle spasms so far) Just to add - I'm at the beginning of road to Chron's (35 years, male). Scared to death, because It is in my small intestine. So far I have just had two nights of stomach pains. No meds at this time, doctors think I'm just another nut patient. Sometimes just wish to die, frustrated to the end. Sorry for my english, I come from Europe.
I was dignosed with Crohns over the Christmas holiday 2011 after spending the night in the ER, with what I thought was a violent case of the stomach flu. I do not have medical insurance therefore have not been to my Primary Care Dr. for any follow up. I seem to get sick to my stomach ALL the time. I could be riding in the car and all of a sudden I have to throw up. I'm not one for taking "Modern or Western medications" would love to treat this as homeopathically as possible. I go from feeling great to feeling like a have the flu in a matter of minutes sometimes. My husband just thinks I've turned into a complainer and has little to no sympathy, which is emotionally rough. Any thoughts or words of wisdom from any Crohns Vetrans?
hi, my daughter has the same thin vomoting acid, she is on sulfolk anti inflamitrys and that is all, she waz doing well on probiotics,everymorning, vitaminc with glutamine,and then red paw paw, mist a couple weeks while she waz in london and has now bin sick 4 over a month. in the last week and a half she has bin vomiting everytime she eats a little, but its like acid, water, bin to docs, nothing else has bin given, im a bit worried she has lost 4 kilo in three days. red paw paw is one food that is staying down. also gingerbeer mkes her feel betta. i dont agree with sterriods either, but would use for 3 days in an emergency, if i felt her bowls where gonna burst. this is something new for us, the vomoting thing, if anyone has any ideas would be great, she waz only diagnosed 4 months ago. x jade
Buy aloe vera juice, drink it before bed. Not the sugary drink but the stuff at the health food store. Cut out wheat from your diet....it inflames. Corn is also iffy. Grains are hard on the system. Ask your doctors to put you on the steroid treatment and good luck.
Buy aloe vera juice, drink it before bed. Not the sugary drink but the stuff at the health food store. Cut out wheat from your diet....it inflames. Corn is also iffy. Grains are hard on the system. Ask your doctors to put you on the steroid treatment and good luck. Google wheat and how horrible it is on the body. Go glutten free and cut grains as low as possible.
I have been on Orednisone at high doses, for 30 years as I sit here, with 8 fractured vertebrae and 2 fractured Prlbis', I am MOW wondering if it was worth it!HOWEVER my Rheumy has dropped my Prednisone from 80 mg/ day, to 7 1/2/ day, and I feel HORRID! I, too, started vomiting ALOT!!! As this is my LEAST favorite exercise, I begged the ER doc, the other day, for something for it- he gave me some sublingual Xofran tablets! What a MIRA CLE!!! I also take Lomotil, daily, and at times must need it up with Imodium Multi Symptom tabs. He also have me a TRUE wonder drug, called, Hydroscyamine- which stops the gramps, even before it's through dissolving! I take Entocort, too, and it helps the intestines tremendously, but it's cost prohibitive, at $1,700.00/ month!! I also take Lialda, an anti inflammatory that act just in the gut! Love it! Even with all of these tools, I am having to wear a Depends, 25/8!!! I'm only 55, and haven't found anyone yet! Not going to, this way, either!!! Lol! I, too, vomit watery bile- which I hate!!! The Zofran has helped that , my other problem, tho, is that my Medicare ins. Only covers 6 prescriptions/ month!! I now take 38!!!! Am totally disabled, and cannot afford that much to spend just on scripts- every month!!!
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