Crohn's Complications

[justmarried2223]

I am a 22 year old female who has been diagnosed with Crohn's disease since I was 16 years old. I have had 2 surgeries because of this . . . I stopped all medications and for the past 3 YEARS I have had NO problems. 7 months ago I got married and now every month I get bad stomach cramps right before my period. I was hospitalized because of the cramps, nausea, and vomitting and the doctor said I had a "bowel obstruction" and he put me on a long list of meds, but while in the hospital I got my period and I felt better. After my discharge from the hospital I was still on meds and a "low residue" diet which I followed, but 2 months later I was hospitalized again for the same thing and again once I got my period (a day after being admitted) I felt better.
I went to the gynocologist last week and they ordered a ultrasound to check my ovaries for cysts, I don't have any that they could see, but the doctor called me yesterday and said that they got an abnormal pap smear result back and that I have excess cells on my uterus or something and now I have to go in next week for a colposcopy. I am very nervous about this, but I just got over my period again and this time I have had bad "burning" cramps in my lower right abdomen, (I have no appendixs) and when the cramps go through a knot forms and then as the cramp subsides the knot goes away. What could this be??? What is the matter with me????

Right now I have just returned to work and I have a nutritionist who has been coaching me on what's good to eat and such. I am on a gluten free and dairy free diet, until my gut heals. It felt like this diet was working, but since this past weeks pains, I'm getting very discouraged. Please help . . .

I know I've been all over the road map, so to speak in this question, sorry, I just really want to know what's going on so I can really start "living" again!!!

Thank you for all your help!!!!

[Moonbeam750]

I think also that your doctors need to get together and discuss your case. Together they should look at the information they have on you and make a determination.  I have been through this where the lack of communication between my different specialists left me bewildered and wondering what to do.  

The other thing is a CT scan will detect any problems with active Crohn's...they should do this for you.  It will also pinpoint any gynecological problems if any as well.

Good luck to you and don't give up...Finding out what is going on is the first step toward getting your health back.

[Zaklin]

If you're from Ontario Canada the low residue diet is common and we wish our daughter would follow it - she's 12 and had been diagnosed with Crohn's January 2008.

Perhaps you should have them do a Barium CT Scan and/or another colonoscopy - our daugther has her Crohn's in the illeum (lower right abdominal area) and has lots of pain there even when she eats her intestine spasms and sends pains so hence she has loss of appetite -if you don't eat you don't have as much pain but that is so wrong on so many levels - not easy to work through when you're in physical pain.

[coughting]

Sounds like the chrons is flaring.  Also, you may have some endrametrosis (sorry, don't know how to spell it.) or something going on.  They are probably feeding off each other.

But you will just have to wait for the tests to learn what you have and how they can fix it.

Best of luck