Disgusting fouwl smelling poop from Chronsi

[Angie568]

My sister is suffering and so am I.  She lives with me her Chrons is really acting up.  For months now she has had very fowl smelling poop.  She also has MS so it is difficult for her to get to the bathroom in time.  What a mess.  The worst parrt is that I cannot us 1/2 of my house.  The smell is so bad and won't go away.   I have someone come in and clean every other day with no success of getting the smell out.  Enough of that, I feel bad for her, it's not her fault, but I can't take it anymore.  What can we do to get the loose bowel to stop.  Going out of my mind.  Will need to find her other living situitation.

[Agnese]

GET RID OF THE BOYFRIEND AND GET MEDICAID ASAP.  YOU ARE NOT A PILL HEAD, YOU ARE SICK.  After you get Medicaid apply for SSI and Medicare.  Severe Crohn's is debilitating enough without all the other worry.  I'm sorry to sound so harsh but I watched my aunt live and not live before my eyes.  She's 52 and looks  85.  For the last 30 years she's been on a regimen of 16 codeine 4 pills every single day of her life... why?  After 30 years of surgeries, Ileostomy/colonoscopy and the countless complications there's not much her doctors can do for her anymore... this is in addition to another dozen pill bottles she has in the house.  Years ago she was told the disease was progressing towards her stomach; which is why she also took up smoking marijuana... to control nausea and give her an appetite but she's still wasting away...

If you're boyfriend doesn't understand than he's ignorant.  If he loves you he would do everything in his power to educate himself and be supportive of you (he can search the internet and do the homework.  You shouldn't have to- and believe me it won't do much).  My ex-husband didn't understand my severe allergies and neither did my ex-boyfriend (who also mentally & physically abused me)- they both told me I was a pill popper....I told each of them "you have no right to judge me when you haven't walked in my shoes...being rushed to the hospital a number of times in my life due anaphylactic shock wasn't fun.  If you were me you'd try to avoid that at all costs".   I shouldn't have to explain myself to anyone and neither should you.  When someone can't be supportive and they tell you don't need something when you know that you do (since you know yourself and your condition best) that's abuse. Being alone is frightening but being with someone who makes you doubt yourself is worse.  GOOD LUCH AND GOD BLESS YOU.

[poseidon5]

If you want your boyfriend to understand the problem, pain and severity of the disease you are dealing with, I recommend searching for images on the internet of crohn's disease.  You will find pictures of blistered, reddened, swollen intestines.  Tell him that THIS is what your intestines look like when your crohn's is acting up.  If he has any common sense, he will realize that anything passing through those intestines - water included - hurts like the dickens!

Also, (for a medical lesson for him), you have constant trips to the bathroom because when your intestines are inflamed they don't work correctly.  The purpose of the small intestines (where the crohn's resides) is to digest the food.  The colon removes the water.  However, when the small intestine quickly passes food through it because it's not working properly, (and in doing so does not absorb as many nutrients or break down the food very well), it causes a ripple effect and causes the stool to pass too quickly through the colon as well.  This is why frequent trips are often runny or diarrhea; not enough water was removed to turn it to a solid.  This is all also why it is very smelly; the nutrients digested by the small intestine, the more evacuated into the toilet.  It causes a much more foul smelling stool.

This can't help solve the insurance problems, pain problems, etc. but it can help and get you some support from your boyfriend!  (Hopefully) :)

[kimburge]

I have Chrons disease and have been divorced this year and living with someone who does not understand my disease, the frequent trips to the rest room that smell the house up and smelly gas I cant controll what can I do I have no insurance and over the couter gas meds make the pain worse, I have been taking vicoden to controll these symptoms but the new boyfriend does not think I need them, what to do I am sad and scared

[poseidon5]

Part of the problem with crohns is that you can't just "stop" the loose stool.  If only it were that easy.  Non-fatty and non-greasy foods could be helpful as fat in the stool can make it looser.  Feed her healthy foods and make sure she gets her fiber to help solidify the stool.  Since getting to the bathroom on time is a problem, maybe you and your sister should consider adult diapers.  She may be embarrassed about them at first, but if she can change them and clean herself up after an accident it will be a lot less embarrassing for her than going on the floor.  Get a special metal garbage can in her room to keep the dirty briefs.  This should hopefully cut down on the smell in the house.