sphincter of oddi dysfunction

[joyceeb]

I had my gallbladder removed in jan 1997.  in feb 2000, i underwent an ERCP and sphincterotomy to reduce the pressure in the duct.  i am STILL having bouts of urq pain.  my gastro doc has me on levbid for spasm and aciphex for acid.  the bouts of pain i'm having are painful enough to stop me from daily activities.  darvocet usually controls the pain however i've had to take percocet on occasion and recently ended up in the ER for a shot of toradol.

i've had a cck-hida with normal results and an endoscopy which disclosed the acid problem.  those tests were done in april 2001.  all bloodwork results are consistently normal.

HELP ... this is just interfering with my life and i'm missing work because of the pain.  the doc has me on "observation" but that is becoming an unacceptable status.

any suggestions would be welcome!

[suzyq79]

I had SOD and had the sphincter cut.  I know of a very good doctor in Cleveland Ohio.  His name is Dr. Michael Sivak he is very good

[Dani]

I have been having the same problems for years now, ever since I had my gallbladder out. Maybe you need to have another ERCP done. I have had 3 sphincterotomies and each time the duct has become blocked with scar tissue. I have also had a stent and had the duct ballooned. Since my first ERCP and sphincterotomy I have started to devlop stones, which were not a problem before. All these reasons indicate to me that you should have another ERCP to find out what is going on. Good luck.

[TE]

Hey Joy-

My name is Tonya.  I had my gall bladder removed in July - 2000 due to the fact that it was severly diseased and inflamed.  I was so sick for a month straight before the surgery.  After the surgery, my nausea got a little better but I still have the urq and ulq pain and my back hurts all the time even more now than before the surgery.  I was finally diagnosed in January with SOD but just by my symptoms.  I have not had the pressures in my ducts checked due to the fact that my GI doesn't do it due to the risks.  He did go in a cut the bile duct w/ERCP in January put didn't touch the pancreactic dut.  I did get alittle relief with the urq pain but not the left.  I lost my job in March due to this.  I'd worked for the state since I was 18 (I'm now 31).  I also have 3 small children and I couldn't work or take care of them.  I was down to 101 in March.  I'm now back up to 115 but my normal weight is 136.  I've had ever test in the book including a 2nd CT scan this past Friday to check the condition of my pancreas and ducts.  I had asked him about going back in and checking out my pancreactic duct but he thinks its to risky but said if the CT shows any diliation he would place a stent in.  My GI's nurse called me today to tell me that it was all normal and that he wanted to wait a little longer and observe as your doc is.  I'm so upset and depressed.  I've been OBSERVED with this **** for exactly a year now.  All my blood work is always normal also.  I'm now considering going to a university somewhere that specializes with this disorder.  I'll be doing some research.  Hang in there and don't give up searching.  We'll find the right doc!!

Tonya