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Tired of Tests Spinster of Oddi Pain
Anyone Else Feel This Way?
Back in November 2001 I went to a Gastro.specialist complaining of RUQ pain that radiated to the back. He performed an Endoscopy;removed 3 polyps and perscribed Nexium 40mg for GERD, ordered a DISADA Scan with Ejection Fraction; (reproduced my pain as soon as it was injected)Scan was abnormal. I then was referred to a surgeon for Lap. gallbladder surgery DEC-18. Had gallbladder removed, no stones, not diseased, Surgeon said it was a "text book" case. I continued to experience pain after surgery, thought it was a "healing process". In MAR-02 I went to my GP for my yearly exam. She took standard blood tests. Called me that week and advised me that my cholesterol was 250 and asked me if I drank much;I don't. She told me my liver enzymes were "up a couple points". In April I went back to my Gastro. Dr. and told him of these results. He ordered many, many blood tests (13 tubes worth) and and abdominal MRI. Suggested Spinster of Oddi Dysfunction. Perscribed Nitroglycerin for the pain and told me to take 2 Nexium vs. 1 for 30 days. He told me he would get back to me if anything else showed up in the tests. Blood tests 5/1 MTI 5/6. To date I have not heard a word from my Gastro. Doc. However; my GP(also received copies of all tests) called yesterday and asked if I was taking any kind of iron pill or suppliment; I am not.What's that about? Also,I had bronchitis 2 weeks ago (Zithromax twice daily)and while on antibiotics pain was pretty much gone, interesting? Nitro also helps (don't like to take it)I am constantly worried it might be more. HELP
Back in November 2001 I went to a Gastro.specialist complaining of RUQ pain that radiated to the back. He performed an Endoscopy;removed 3 polyps and perscribed Nexium 40mg for GERD, ordered a DISADA Scan with Ejection Fraction; (reproduced my pain as soon as it was injected)Scan was abnormal. I then was referred to a surgeon for Lap. gallbladder surgery DEC-18. Had gallbladder removed, no stones, not diseased, Surgeon said it was a "text book" case. I continued to experience pain after surgery, thought it was a "healing process". In MAR-02 I went to my GP for my yearly exam. She took standard blood tests. Called me that week and advised me that my cholesterol was 250 and asked me if I drank much;I don't. She told me my liver enzymes were "up a couple points". In April I went back to my Gastro. Dr. and told him of these results. He ordered many, many blood tests (13 tubes worth) and and abdominal MRI. Suggested Spinster of Oddi Dysfunction. Perscribed Nitroglycerin for the pain and told me to take 2 Nexium vs. 1 for 30 days. He told me he would get back to me if anything else showed up in the tests. Blood tests 5/1 MTI 5/6. To date I have not heard a word from my Gastro. Doc. However; my GP(also received copies of all tests) called yesterday and asked if I was taking any kind of iron pill or suppliment; I am not.What's that about? Also,I had bronchitis 2 weeks ago (Zithromax twice daily)and while on antibiotics pain was pretty much gone, interesting? Nitro also helps (don't like to take it)I am constantly worried it might be more. HELP
I agree, I am trying to control it, but IT is controlling me.
I am really considering it though.
Lor was brave.
Talk later!
I am really considering it though.
Lor was brave.
Talk later!
Has anyone had success with a liver/gall bladder cleanse? how do you do it and does it really work? It might be worth a try to get some relief.
You sound JUST LIKE ME! ALMOST EXACTLY. I have yet to find any relief. I have had every test in the book and had the gallbladder removed. Please Please email me with any news on this ***@****
For some reason my GI Doc thinks this is Acid Reflux...but after being on 2 doses of 40 mgs. of Protonix daily for 7 months and still NO RELIEF and the pain goes into my back. I will be seeing my GI Doc this next week to see what he can pull out of his sleve. I have tried so many things.
GOOD LUCK TO US ALL!
For some reason my GI Doc thinks this is Acid Reflux...but after being on 2 doses of 40 mgs. of Protonix daily for 7 months and still NO RELIEF and the pain goes into my back. I will be seeing my GI Doc this next week to see what he can pull out of his sleve. I have tried so many things.
GOOD LUCK TO US ALL!
Please let us know what your GI doc says. I can't believe this could all be caused by reflux. Pepto Bismoth used to help some I have been on Nexium for 7 months with no relief. My 11 uear old says that she is going to grow up to be a Dr. so she can find a way to make me feel better and live forever :).
I am relieved to see that others cannot take codeine, etc. without experiencing intense "gallbladder attack" type pain. Now, thanks to this forum, I know I too have SOD.
Had my gallbladder out 13 yrs ago and experienced episodic pain thereafter. After about a year, I went back to GP to see if there was a solution to the pain. He sent me back to the surgeon who referred me to a gastroenterologist. Gastro wanted to do an ERCP - I freaked out because of the possibility of severe complications. Went to another gastro for an opinion (in Dallas) and he said that an ERCP wasn't really warranted, to give it time and it would get better. It did, but I did and still do occasionally have "attacks".
Finally I recognized myself that most of the attacks occurred when I would take cough medicine (prescription with codeine). About the time the coughing would stop, the intense pain would begin.
Talked with at least two drs - GP and OB/GYN about that - neither mentioned SOD.
I take Bentyl when it starts and that usually does the trick.
Had my gallbladder out 13 yrs ago and experienced episodic pain thereafter. After about a year, I went back to GP to see if there was a solution to the pain. He sent me back to the surgeon who referred me to a gastroenterologist. Gastro wanted to do an ERCP - I freaked out because of the possibility of severe complications. Went to another gastro for an opinion (in Dallas) and he said that an ERCP wasn't really warranted, to give it time and it would get better. It did, but I did and still do occasionally have "attacks".
Finally I recognized myself that most of the attacks occurred when I would take cough medicine (prescription with codeine). About the time the coughing would stop, the intense pain would begin.
Talked with at least two drs - GP and OB/GYN about that - neither mentioned SOD.
I take Bentyl when it starts and that usually does the trick.
Update on my CT Scan I had on Tuesday.
The gastro doc called and said the Bile Duct showed 11 mm of dilation and something about the extrahepatic duct. Since, I have had my gallbladder removed many years ago, the radiologist suggested to my gastro Doc to order a MRCP. It is suppose to be safer than an ERCP and just as good at diagnosing a problem in the bilary duct and pancreatic duct. They have scheduled in for this coming Monday. Now, something more to be concerned about.
Maybe the the surgeon left a stome in there after all these years.
The gastro doc called and said the Bile Duct showed 11 mm of dilation and something about the extrahepatic duct. Since, I have had my gallbladder removed many years ago, the radiologist suggested to my gastro Doc to order a MRCP. It is suppose to be safer than an ERCP and just as good at diagnosing a problem in the bilary duct and pancreatic duct. They have scheduled in for this coming Monday. Now, something more to be concerned about.
Maybe the the surgeon left a stome in there after all these years.
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