Saw my Gyn last night for a follow up. He feels that there is some questionable underlying infection in my body that is not detecting. He is sending me to an infectious desease DR. By the way I am 33 and it should have been highly unlikely for me to get mono at age 32. By then everyone should have some immune build up to it.
Still waiting on an answer. Gyn sent me to an infectious disease DR (Known to be the very best in this area). Saw him. Great DR. He informed me that it was not an infection in my body. He believes it is an autoimmune disease. Leaning in the direction of a Collagen vascular disease. I only can find 5 types under that. Trying to figure out which one I fall under. Sent out 5 viles of blood to test several things including my liver and heart. None of them seem very kind diseases. Have a follow up next thursday. As much as I want to know whats wrong, I hope he is wrong.
I also have right upper quadrant (flank) pain. I have had it for a couple months. At first it was off and on but now it is constant and getting worse. At first when I complained back in 2003 of upper right quadrant pain, they tested for gallbladder disease, I was told to have it removed. While preparing to have my gallbladder removed I had blood in my bowel movements so my Gastroenteroligist did the colonoscopy and found the Crohn's. He advised to take medication and not have the gallbladder surgery until the meds can take affect and the diseased area is better. I had another test for gallbladder in 2005 and so far so good .. its ok .. don't need to come out.
I still experience the pain in my upper right side but more on the side around the rib cage... slightly in the back area and travels around to the front towards the belly button and blood in my urine.
In the process of countless tests since 2003, I found out I have Fibromyalgia and Crohn's disease and now I was just told I have lesions on my left Kidney and cyst on my right Kidney. The doctor told me that the cyst is not causing my pain though. He told me its my Fibromyalgia causing me the pain. I am not sure I agree with him so I keep going and going to try to find out what this is. I am 43 year old female and tired of feeling like I am 80 on some days. I can't sleep on my right side, bend at the right side, can't sleep on my back and now I am having problems sitting because the pain that is going from the right side to the belly button. The area where I have pain is so tender .. I can't lean across a table without it hurting. Can't walk through a mall or grocery shopping without it getting worse and causing me shortness of breath.
Like I told my doctor .. I know something is wrong but don't know what. I feel too bad to not have something wrong. Heeeeeeeeeelp :)
I also have right upper quadrant (flank) pain. I have had it for a couple months. At first it was off and on but now it is constant and getting worse. At first when I complained back in 2003 of upper right quadrant pain, they tested for gallbladder disease, I was told to have it removed. While preparing to have my gallbladder removed I had blood in my bowel movements so my Gastroenteroligist did the colonoscopy and found the Crohn's. He advised to take medication and not have the gallbladder surgery until the meds can take affect and the diseased area is better. I had another test for gallbladder in 2005 and so far so good .. its ok .. don't need to come out.
I still experience the pain in my upper right side but more on the side around the rib cage... slightly in the back area and travels around to the front towards the belly button and blood in my urine.
In the process of countless tests since 2003, I found out I have Fibromyalgia and Crohn's disease and now I was just told I have lesions on my left Kidney and cyst on my right Kidney. The doctor told me that the cyst is not causing my pain though. He told me its my Fibromyalgia causing me the pain. I am not sure I agree with him so I keep going and going to try to find out what this is. I am 43 year old female and tired of feeling like I am 80 on some days. I can't sleep on my right side, bend at the right side, can't sleep on my back and now I am having problems sitting because the pain that is going from the right side to the belly button. The area where I have pain is so tender .. I can't lean across a table without it hurting. Can't walk through a mall or grocery shopping without it getting worse and causing me shortness of breath.
Like I told my doctor .. I know something is wrong but don't know what. I feel too bad to not have something wrong. Heeeeeeeeeelp :)
Jenxie: I finally was sent to an infectious disease Dr. Unlike you with all my pain and additional problems, they can't seem to find anything wrong with my blood nor my organs. Yeah, but what is causing everything. Like you the Infectious disease Dr. also believes I have Fibromyalgia/Chronic fatigue syndrome. I was actully physically sick while I was in his office and told me nothing looked wrong with my blood work. He told me to see a rheumotologist if I needed a second opionion. Although I know I have alot of those symptoms, I am not convinced. I know that there is no definite test to prove you have it. I also know that if you are sick with these multiple symptoms but nothing seems to be evident they are quick to put you in that category. I am going to chalk it up that I don't have anything serious. However, I know hormones can play a serious role on your body as well. Since this all started over 2 years ago when I had my child I am going to deduct that it has to do with them. I had never been on birth control before my pregnancy" am 34 now". My doctor convinced me to go on after so I would not get pregnant immediately after. I have been told by several friends including a nurse who deals with this, that alot of women have serious issues with birth control after having a child. Some go mental and some go physical. (I am not implying post pardum) Not to mention that some do this before a child too. I took myself off since March. But since my PCP had put me on Lexapro I don't think I was getting any better. Lexapro made me extremely worse. I chose to take myself off of that as well. Right at this moment, other than sinus issues I seem to be improving. They say my pleaursys feeling is not that anymore. I think they are calling it part of fibromyalgia, which would make my pain muscular. Oh well, I guess I am just a crazy person and all that is going on with me is just in my head. I guess I am mentally causing it all to be a reality. At least I think that is what the Drs are thinking.
I hav been having the same symptoms that you are medically annoyed. I too was diagnosed with mono, but it was when I was 12, (I'm now 28). I'm wondering if there is a connection between the two problems. Could mono damage your liver? I have been having a general unwell feeling for years, really lethargic, headaches, swollen lymph nodes, achiness, and intermittent upper right quadrant pain. I have seem many drs. and am losing faith in the medical community! Have you had a biopsy of your lymph nodes? My dr is worried about it and wants to do that test.I have been diagnosed with IBS, ulcer, gastritis, etc. The pain is sometimes really noticable in the shower when the water hits that spot and it is really tender. I have also had reoccuring bronchitis and strep throat for years since the mono at age 12. Also I have frequent stomach problems, I never know how my stomach is going to act. I am getting so frustrated with feeling like this!!!!!