Dysautonomia (Autonomic Dysfunction) Community
Autoimmune Dysautonomia
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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Autoimmune Dysautonomia

Do any of you have autoimmune dysautonomia?  How were you diagnosed?  What treatment do you recieve if you don't mind me asking? I have seen one neurologist and will be seeing another in 2 weeks.  I have other autoimmune disorders and believe I may have this too.  I have had a rough couple of months and was diagnosed with polyneuropathy- however things have gone down hill since then.  I have digestive issues, temp. control issues, muscle aches, numbness and tingling in extremities.  All of this started after the H1N1 vaccine which I guess could have prompted an autoimmune response.  Shelley
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They haven't fingered an official cause for my dysautonomia, though I am also diagnosed with narcolepsy with cataplexy, which some newer research is showing may be autoimmune in nature.  At any rate, some of these links may help answer your questions:

http://www.medhelp.org/health_pages/Neurological-Disorders/Diagnosing-Dysautonomia/show/827?cid=196

http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/Where-have-you-gone-for-diagnosis-treatment/show/952807

http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Specialists/show/717?cid=196

http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Treatments/show/171?cid=196

http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/What-is-your-treatment--How-well-controlled-are-your-symptoms/show/524008

http://www.medhelp.org/posts/Dysautonomia-Autonomic-Dysfunction/What-is-your-Dysautonomia-Treatment/show/986347

Hopefully community members with autoimmune dysautonomia will chime in on this if they get a chance.  Is the neurologist you're seeing at a major teaching hospital?  Do you know if s/he has some expertise in autonomic neurology?  You may want to ask for a list of what autonomic testing they have available at that hospital or any nearby facilities.  
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