Dysautonomia (Autonomic Dysfunction) Community
Dr needed
About This Community:

This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Dr needed

My husband needs a definitive diagnosis for autonomic dysfunction.  We are looking for an outstanding physician in the NY-NJ area.  Compassionate and very smart.  His diagnosis was made by an internist who probably has no other patients with this disorder.  Thanks
Related Discussions
3 Comments Post a Comment
Blank
492869_tn?1285022533
I am aware of two hospitals in New York that diagnose and treat patients with various forms of Dysautonomia and Autonomic Dysfunction.  Unfortunately, I am not aware of a specific specialist.

Langone Medical Center:
http://pediatrics.med.nyu.edu/dysautonomia/

Mount Sinai:
http://www.cgdms.org/neurology/autodis/disorders/

Dysautonomia and Autonomic Dysfunction Specialists:
http://www.medhelp.org/health_pages/Neurological-Disorders/Dysautonomia-Specialists/show/717?cid=196
Blank
Avatar_m_tn
I live in NYC and was diagnosed with small fiber neuropathy and orthostatic intolerance by the Mayo Clinic in Minn. For follow-up treatment i have been seeing Dr. Louis Weimer at Columbia University (who heads their autonomic testing lab there). He is essentially following the Mayo Clinic's treatment suggestions but is knowledgeable and aware of the alternative options since these conditions require tons of medication adjustments / trials. He is a bit socially awkward but it's not arrogance - i think he'd just prefer to be i the lab than with people. The one thing to remember is this is a teaching hospital so "fellows" are the ones taking call shifts (nights / weekend) and you will sometimes be working with their less experienced fellows but Dr. Weimer will always be involved. I am still having a tons of problems getting my condition under control so i have also debated going back to Mayo or trying Vanderbilt or Cleveland Clinic as there is some add'l testing i'd like done etc. I hope this helps!
Blank
612876_tn?1355518095
The facilities halbashes listed above are both dedicated dysautonomia clinics and should have the same level of autonomic testing capacity as Mayo/Vandy/Cleveland.  (Unlike most every other hospital in the nation.)  That's why we have those hospitals' dysauto clinics listed on our health page to which halbashes linked--they are unique in this.  If you have questions about this, I would definitely recommend you at least call Mount Sinai and/or Langone to inquire about their facilities before traveling all the way to one of the other centers, since you have two right there in NY.  

If you need a list of tests that generally comprise a comprehensive autonomic testing facility, let us know.  
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Dysautonomia (Autonomic Dysfunction) Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Arrhythmias Answerers
1124887_tn?1313758491
Blank
is_something_wrong
Oslo, Norway
612876_tn?1355518095
Blank
Heiferly
Columbus, OH
Avatar_m_tn
Blank
Ball123