DYSAUTONOMIA (AUTONOMIC DYSFUNCTION) COMMUNITY
Home again, home again, jiggety, jig

Home again, home again, jiggety, jig

I broke my record for most IV bags in under 24 hours getting "tanked up" at the hospital!!  LOL

As you might assume, yes, I finally hit the tipping point where I couldn't function without a fill-up so I called my cardiologist's office and headed off to the ED yesterday early afternoon.  Was there just short of a full day, and took in over 5 L IV plus oral fluids.  Mmmmmmmm, fluid-y.  :-p  I went from nearly taking a header into the commode at the hospital because just trying to move myself from the wheelchair there and back was enough to bring me to the brink of syncope, to being able to walk a lap around the ward this morning with ease.  :-)  

In other news, for those who had been keeping up with my crusade to get home IV therapy, the ball is finally rolling!  My cardiologist appointment last week went well, and the next step is getting insurance approval.  That could take a while, but I can have patience now that I at least know the gears are turning.  Well, answering a couple posts just now has been my only upright/awake time all day, and I think I'm rapidly slamming into the end of that.  The IVs *really* perked me up, but I didn't get enough sleep while I was in there, and now the narcolepsy is in the driver's seat and I need to zzzzzzzzzzzzzzz.......

Take care everyone.  For everyone else who benefits greatly from IVs, just a reminder that even though the ED is NEVER fun, getting "the tubes" is always worth it in the end.  I could dance a jig right now (if only I could wake up, hahaha).
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9 Comments Post a Comment
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My cardiologist gives me IVs in his office-- which is so much better than having to go the ED. I am in and out in a few hours.  I too feel like a new person once I have had IV fluids.
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No jig dancing. You are so funny.  Rest. Feel well soon.  
Tkimber
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Glad to hear you are getting the home IV therapy soon!

Take it easy!

Karin
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Good news that the ball is actually rolling for you on this one :) x At last!

and I am glad you are having some relief x

I am *still* waiting for a call back from my cardiologists secretary about the IV's he said I could have on a 'as need basis'!!  Now would be as good a time as any!!  

If I could hunny I would do the jig with u!!! x

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Do get some rest. They never let anyone get enough sleep in the ED or hosp. imo! If you can perk up that much after IV fluids, you should definitely be allowed to get home IV therapy. It's essential to your quality of life! I'm glad it's working out for you.

Have a restful weekend!
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Hope you can get the home IV's soon and that you are feeling better and more rested. Happy 4th!
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Is your insurance paying for the IV's at your cardiologist's office?  Do you know what diagnosis they are billing it under?  What is in your IV?  Just saline?  I do well with IV's too when I can get them but so far only on emergency basis.
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Thanks for all the kind comments!  I've been sleeping a TON, and enjoying the little things.  (Like being able to turn my head quickly without getting nauseated.)  It's amazing to me how much difference simple saline can make, LOL.  
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   Hey there ;)  Sorry I am a couple days late in posting......Glad that the IV Fluids help.
I too know that they help me when I am hooked up to a line......AMAZING  isn't it?

Take Care,
~Tonya
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