I was recently diagnosed with dysautonomia, after having several fainting episodes and other issues. My doctor put me on metoprolol and fludrocortizone (had a terrible reaction and that was the end of that) and now I'm taking midodrine as well. I'm still fainting like crazy - more frequently than I initially was, to be honest. Does anyone have any advice for coping with this? Sometimes after I faint, I can't move my limbs for several hours afterward. I was told this was normal, but I'm having a hard time feeling like I'm even human anymore. It makes school very difficult. Thanks!
so sorry to hear you're going through this; it is extremely difficult sometimes to find the right combonation of treatments/changes that works for each of us
yes it's very common to feel this way; when I have episodes I've learned to listen to my body and rest if I feel tired after...sometimes mine will last for 3 or 4 days yet other times just 1 day
they may be able to up your midodrine dosage so mention to your doctor that youre still having symptoms. I'm not sure what other things they have you on or what other symptoms you're having? salt & fluid loading? I do notice that if I drink ice cold water when I start feeling "icky" for lack of a better word it does seem to help somewhat
others use compression hose and garments as well as binders; they dont work for me and only make my legs/feet ache that much more and I've learned for me it's important with orthostatic intolerance to move very slowly or change positions gently or I get sick
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