Dysautonomia (Autonomic Dysfunction) Community
POTS and autoantibody testing
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This patient support community is for discussions relating to Dysautonomia (Autonomic Dysfunction) including: Postural orthostatic tachycardia syndrome (POTS), neurocardiogenic syncope, mitral valve prolapse dysautonomia, pure autonomic failure, autonomic instability and others.

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POTS and autoantibody testing

A study came out earlier this year showing a connection between autoantibodies and pots.  http://www.dysautonomiainternational.org/blog/wordpress/new-evidence-of-autoimmunity-in-pots/
At this point, this testing is not available outside of research.  However, researchers hope that additional research will lead to new treatments for POTS.  Other sources (including Richard Horowitz) have advocated testing for antiganglioside antibodies with POTS.  Does anyone have any information or experience about having this done?
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I'm friends with the people in Dysautonomia International who are working on this initiative. Your best bet is to contact them for more information. I see you already are aware of their website.
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612876_tn?1355518095
I'm friends with the people in Dysautonomia International who are working on this initiative. Your best bet is to contact them for more information. I see you already are aware of their website.
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Avatar_m_tn
Thanks for your reply.  I will try contacting them.
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