Pots while pregnant, any info??

[sn88]

I am now 19weeks pregnant and have had quite a few complications with this pregnancy, i was feeling very unwell and the doctors, midwives and hospital didn't seem to take me seriously. After an internal bleed around my womb i visited the hospital for a follow up appointment where they discovered my heart rate was way too fast, i was admitted into hospital were they ran a number of test were they discovered i had POTS symdrome, i have struggled day to day with this and find it very frustrating that no medical professions i have seen have seemed to have an idea of what POTS is and how to treat me, They have recently put me on beta-blockers which seem to help slightly but i'm still struggling with getting up the stairs or doing simple day to day tasks, this is worrying to me as i don't have any energy so the birth is on my mind, again the hospital seem to not be able to give me any info on what the outcome could be if i could give birth naturally or through c-section?? Anyone been in similar situation and have any info??

[Heiferly]

I'm sorry you're not getting more help from your doctors. Perhaps you could tell them that there's a protocol for POTS labor and delivery published by mayo clinic that you'd like them to at least look up and read?

[sn88]

Thankyou for your response, i have found it quite useful reading everyones questions and responses. I am now under numerous consultants and still they seem to not understand a lot what i am going through and actually look up my condition on the internet in front of me which i don't find much of a comfort. I was on 20mg of beta-blocker which took the edge off in the mornings but felt very sick and tired in th e afternoons, i recently had a follow up appointment where they have put me on an increased dose (80mg of Propranolol) which are a slow release but still i am finding i'm suffering with fatigue and starting to feel faint again while standing amongst other symtoms.
When i was at the hospital, i asked about the labour and the consultant just seemed to roll his eyes an say by then they should of cracked it and thinks the possability of a natural labour is promising, to me this is worrying as they dont seem to listen to how exhausted i am and worry that i will not have the energy to deliver, i would also prefer no tools to help the labour such as forceps and suction cap if natural labour is a struggle. I am now also struggling with severe pain in my pelvis and find it even more of a problem to walk and even sleep.
I have realised that over the years i have had signs and symptoms of POTS symdrome and that the pregnancy has aggrivated it, i'm just hoping that once i have had my baby it will get better and i can start living a normal life again.  
Reading other POTS sufferers posts i guess everyone is different, i just wish there was more information these doctors could give us to set our minds at rest, but it is good to know i am not going through this alone

[Heiferly]

This has been discussed here so many times, I don't want to limit you by just pointing you to two or three of those conversations as I can see you're eager to learn what you can. Hopefully you can comb through here and find more than enough information:

http://www.medhelp.org/forums/search/266?utf8=%26%23x2713%3B&query=pregnancy

You should be consulting with high risk OB at your closest major teaching hospital about your delivery, particularly discussing the delivery with high risk anesthesia. There are journal articles that they can pull which go over protocols for your delivery, so ignorance just isn't an excuse for these doctors!!