My question is somewhat detailed and I hope it doesn't appear I'm taking advantage. I realize answers I receive are general and not definitive. I've had tremendous struggle and believe Chronic Fatigue Syndrome is a strong possibility.
I have Hashimoto's caused hypothyroidism (diagnosed 2003) and am also absolutely positive I have mitral valve prolapse. In my teens an MD found a heart murmur & after follow up with a cardiologist I was mistakenly diagnosed me with Wolf-Parkinson-White-Syndrome. WPWS was later ruled out in 2001 by electrocardiogram (at age 40) but I did not get an echo to detect MVP. Despite this my symptoms shout MVP; orthostatic hypotension (brief after standing), heart skips & flutters, anxiety spells (panic attacks during youth & young adulthood), severe fatigue especially after exercise.
My hypothyroidism is well-treated (very sure of this) but symptoms continue and not likely thyroid hormone related but may be aggravated by my thyroid antibodies (I found research: thyroid disease & MVP highly related).
The symptoms I continue to experience are orthostatic hypotension (BP slightly high otherwise), severe fatigue, headaches with lots of referred pain to them (feel them throughout my body) and nerve type pains otherwise.
I had an MRI which was clear. I've had everything else ruled out as well including, low B12, anemia, systemic autoimmunity, diabetes (although I do have metabolic syndrome and non-alcoholic fatty liver). The only other abnormals on my blood labs are a slightly low phosphorous level and slightly elevated Chloride (both flagged on several tests).
Symptoms are so severe I am considering applying for disability because I struggle terribly with work etc... One more interesting aspect to this is the fact that when I turn my head to either side and tilt it back slightly, it feels like I loose blood circulation to my head (have to be careful sleeping) and I have difficulty breathing, lying on my back (I'm 6ft but only weigh about 235lb, so not terribly obese). It also feels like my blood pressure drops and my heart struggles a bit when I bare-down like when you're blowing up a baloon or having a bowel movement, especially when I'm lying flat.
Testing suggestion? Suggestions of any kind please? Thanks much!