Thank you SO MUCH for your letter. It was what I was hoping to hear. Please let me know the name of your doctor at the Cleveland Clinic and I will call ASAP.
I am horribly sick today, otherwise I would write more.
Thank you again!
Cathy
I'm on my way out the door to a long day at the doctor, but wanted to say some things quick. There CAN be treatment for autonomic dysfunction! I had worsening symptoms for years, got mad with just treating symptoms, went to Cleveland Clinic, got diagnosed with small fiber neuropathy, and had extensive tests to look for a cause. There are a lot of causes for peripheral neuropathy, although doctors can't always find one. Mine turned out to be Sjogren's, which can at least be treated to keep it from destroying more nerves. My neurologist says there's actually a fair chance that I could start regrowing nerves once my immune system stops attacking them. MedHelp has an informative page on Peripheral Neuropathy in the Health Topics section. When your doctor diagnosed your neuropathy, did she do an EMG (for large nerve) AND a skin biopsy (for small fiber)? I know it's worse if there's motor neuron involvement, and maybe you can't regain what you've lost, but it seems like something could be done to keep it from progressing. Did your MS doctor run tests to look for causes of the neuropathy? Is she saying it's from the MS? Feel free to send me a private message to discuss. If nothing else, I can give you the name of a fabulous small fiber neurologist.