What do I do?

[angel743]

Autonomic Neuropathy was just recently brought up as a possible diagnosis to explain the wide range of complex and debilitating symptoms that years ago came and went and now run my life. Over the years of many different doctors telling me that the symptoms are just all in my head, the symptoms worsened, and more became relevant.  Now at only age 30, I have to catheterize myself every time I need to urinate, the nausea and vomiting from the gastroparesis leads me to the hospital atleast once a week for hydration, the pain severity is becoming intolerable even with the Fentanyl patch, and not to mention my heart rate and orthostatic blood pressure. I'm terrified. The worst part about it is that I have to deal with all of the physical ailments along with the emotional aspects alone..... My depression just keeps getting worse... My family doesn't believe me even though they never see me in this constant battle for a healthy life. My "so called friends" abandoned me when the symptoms became overwhelmingly debilitating.  It is so hard to keep going... Sometimes I just need a hug and a reassuring sentence saying, you'll be ok... Even if I won't be. HELP!?!?!?

[angel743]

Thank you so much for your support. This past year has truly been a fight for survival. I am going to go to Seattle with high hopes and a positive attitude. I have always believed that "where there's a will, there's a way!"

[Ball123]

You will be ok:). You WILL be ok.

You need to find the good doctors. Maybe you will do that now in Seattle. Remember that medical science goes forward all the time. In some years they will be able to cure you and you will get your life back. You just need to find the best doctors to get good help while you survive this. You can do it!
I believe in you! HUG!

[angel743]

I am becoming more and more anxious about the trip to Seattle to be seen about the gastroparesis... I am just being dropped off and left in Seattle until Im ready to go home I guess. This is such a hard emotional struggle because I feel so alone... I have spent so much time crying and praying to God for answers.... I feel like a child in a big mall who has lost her parents....

[Ball123]

I feel for you. It is not easy to be ill like this. For me, my body feels like a prison. I can not do anything anymore, nothing at all. I am quite new to this so I don't have any good medical advice but it is absolutely not ok that your family and friends abandon you. People simply can not behave like that. But I must also say that it needn't just be that they abandon you; some people just don't know how to handle the situation. They are afraid of coarse and don't want to admit the seriousness of the situation. I have noticed that myself. It is easier to say that it is all in your head, even though they know inside that it is not.

At least you have your pets;)!