did the provigil help you, were you able to stay on it?
Oh, and I *love* that you described us like snowflakes because just yesterday I used that word to describe POTS patients to my mom, and I've never heard anyone else say that!
Thanks for the response Heiferly :) I figured this might be a hard one for people to respond to because we are not doctors, but honestly, you all know more about all of this than any doctor I've seen yet. The Vyvanse is the one I thought about also. I think it does make me a little more jittery but that extra jittery-ness seems to fade during the day as the medication wears off. And the fact that it gives me enough energy to be a little productive for a few hours during the day, for me, outweighs the negative of the temporary extra jitters. But while the jitters wear off later in the day each day and I think that's it's only negative side effect for me, I just hope it doesn't have underlying or longer lasting effects the affect my entire condition that I'm not aware of.
Your cardiologist is probably the best person to ask about this. Given the "I am not a doctor nor a pharmacist" spiel, my best *guess* would be that the Vyvanse would be the most likely of your meds to conflict with POTS. I have narcolepsy and when my sleep neurologist sent a list of possible narcolepsy meds to my cardiologist for approval (as in, which ones would be okay for my dysauto), the drug that is almost identical to Vyvanse was crossed off the list entirely by my cardiologist. Provigil was given the OK as the first choice (though cautioned that it still could have an impact--indeed it did, and I especially struggled tapering on to it). Ritalin was given a hesitant okay as a backup choice if Provigil didn't work, but ONLY if Provigil didn't work, and perhaps even then it might not be workable with the dysauto.
Again, though, that's ME. And you're YOU. So I highly recommend you talk to YOUR cardiologist (or whoever handles your dysauto if that's not your cardio).
With Klonopin, I would imagine sudden dosage changes in general would be iffy. Our bodies acclimate to benzos, especially with long-term use. (I take a low dose of lorazepam myself.)
Sorry I can't give you more input. One of the issues is that a fair number of dysauto patients have drug sensitivities and they aren't always consistent from patient to patient. We're like unique little snowflakes that way. Sometimes the best thing to do is to carefully track your own vitals and side effects as you start and stop different medications so that any changes will become apparent, and you can point them out to your docs. :-/
Best,
Heiferly.