Is there any chance you woudln't mind giving me that doctors email address...i'm just interested in what he would have to say about my symtoms. If you don't want to i totally understand but if so thanks in advance :)
thanks for all your advice and help...i think it may be that the sinus infection is causing nerve inflammation.....the neuro didn't seem worried because the CT scans were fine..he said i probably had a virus and this caused either nerve damage or inflammation. The ENT says it's only mild to moderate sinus disease as i've mentioned and he's supposedly really good at what he does. of course none of this helps me since the pain is still there and getting worse or so it seems. I live in Halifax NS and there really isn't many options here when it comes to specialized doctors unfortunately. I've seen two of the best (supposedly)..i have other ideas since neither seemed to help. I may end up getting the sinus surgery and see if that takes care of the issues...hate to do it and then still have the pain.
I just received an e-mail from a physician in Toronto that I have e-mailed with on another forum in regard to my own sinus & respiratory problems. I asked him if these drs. wouldn't give you a copy of your records were just giving you a line of B.S. Here is what he answered: There are some formalities that need to go through to get your medical records, but officially they do belong to the doctor's office even if they are records about the patient's health; however, if a patient requests parts or all of the record, it must be provided except in certain circumstances (e.g. with psych patients where seeing some parts of the record may actually result in harm).
Actually, all you need is a copy of your scans. This is what I suggest and do here when I want a record: In writing and dated and signed, I hereby authorize and request you to release to myself (NAME) a copy of my CT Scans dated (DATE/DATES). I'm sure that is the formality my e-mail dr. corresspondent is referring to.
By the way, craniosacral therapy, cranial osteopathy, and prolotherapy in the U.S. are not covered by ins. or Medicare, but I have just had to pay the price for these treatments to get relief. Any money spent on your health is money wisely invested..
The feeling of your head swelling up and burning and stinging is not like what I have with the chronic sinusitis. What you tell me of your symptoms sounds like it has to be related to nerves or blood vessels. It is wierd, but your neurologist should be able to figure it out.
Some other ideas to consider in the meantime: A cranial sacral therapist;
A cranial Osteopath
A prolotherapy specialist
Prolotherapy is injection of "trigger points" anywhere in the body. I have had then for TMJ and other things with success. He even injected some points on the back of my head, occipital area, with relief of pain and aching. Google in Prolotherapy and see what you find. Where do you live in Canada? Big city or small town? I am in Phoenix, AZ and we have everything here, every kind of specialty and specialists imaginable.
so you pain acts up when in air conditioning and cold air? That's exactly what mine does...sometimes it can be mild any other time but when i'm out in the cold or in air conditioning for more then a few minutes it feels like the left side of me head swells up inside and stings and burns like crazy...is it the same for you? or is it more of a headache feeling?
I am at a loss for words right now. Just can't figure it out, bet then again neither of us have any helpful information to go on. Yes, I have sinus pain, but different from yours. It really comes on when in an air-conditioned store or exposed to any cold air. Whatever you have, that should be a significant symptom to help any dr. in diagnosis.