worried about ears...patulous euastation tube

[hawkings]

Hi does anyone have PET (patulous eustation tube)-when they talk, they hear their own voice very strangly and ears feel like their full of pressure. Does anyone know how to deal with this? Can this be cured? although i know i have eustation tube problems and my ears always feel clogged.
Thanks
Hawk

[kit789]

Hi

my name is kit. I just turned 50. I was started to go through menapause when this started, dont know if my hormones being out of balance could have started this, The doctors think maybe??but dont know for sure.
I have had some allergies, also.
I went to an ENT doctor and he thinks I have patulous ear, meaning  the eustaian tube in my ear doesnt close. I have had this since january, 2013, it started one night and has never stopped since. I hear my hearbeat pounding in my ear all the time, it is worse at night, becomes very faint during the day, repeats the same cycle over and over.
I t really scared me at first.
I went to a Nuerlogist, and I had a MRA. That looks at blood vessels and arteries in the head. It was normal.
The ENT wants me to get a CT scan,
The ENT wants to make sure I dont have a thin temperal bone, there is a medical term for that

did you have a CT scan?
What test did you get
Is that what you have?patulous ear.
please forgive all the spelling errors, too tired to fix it all

saw this video on utube to try and cure patulous ear, its this exercise you can do to try and close your eustatian tube, Im trying it, has helped a tiny bit , as far as I can tell. I figure its worth a try.

best of luck to everyone that has this.
sending you positive prayers, best of luck with your operation.

Kit

[briley1955]

I was treated for Wegeners with large doses of Predisone resulting in PET.

[mari78499]

I have all the classic symptoms of pet and am ging crazy!  In addition, I also have begun getting a pressure in both ears and some facial discomfort.  The ent told me to see another dr. who treats sinus problems..Can pet create sinus pain?  Do any of you have similar ailments?

[mtur]

Has the operation worked and are you still teaching?  I am a teacher and am diagnosed with PET.  I do not know what to do as it has affected my teaching ability.  I am on sick leave but want to go back.  It has happened when I lost a lot of weight due to an illness.  I am trying to put the weight back on but no change in my condition.  This has affected my life and my family.  I find it hard to converse alot and am alittle depressed.  I should have taken better care of myself.  Please reply.

Thank you,

Pat

[yorkere]

The product is known as PatulEND, and is sold by Otologist Dr. DiBartolomeo of the Ear Foundation in Santa Barbara, CA... 805-563-1111

It sells for ~$50/small bottle, with no need for a prescription.

It does work although it may take over a year to rid you of the condition completely...read the instructions completely!  It's hard to learn how to use it correctly; the fluid must reach the Eustachian tube to sting it shut after properly squirting it into the nostrils.

Robert

[marymac1227]

I am a sufferer of PET and I must say, it is driving me absolutely crazy.  I cannot stand the feeling of air going out of my ear; the autophony (that really gets to me) and just everything about it.  I went to an otolaryngologist three time within 4 mos. and he nor his otolaryngologist brother could diagnose my problem.  I finally started doing what I do best and researched it myself - Sure enough - I am a text-book case of one who has PET -- CONSTANTLY.  The otolaryngoologist doctor told me on my last visit that he couldn't help me b/c he didn't see anything wrong and my hearing was super fine.  He said whatever it is, "you're just going to have to get used to it."  He further went on to say that he has to "pop" his ears all day long - "just ask my girls who work with me, they'll tell you."  I said when you pay me a $15.00 co-pay, then I'll listen to your problems.  I have suffered with this annoyance for more than 4 years now.  I am going to see a chiropractor (he's not just a chiro - he's extraordinary - if anyone can help me or at least send me in the right direction, it would be him.)  I have tried all of the above, absent surgery, and the ONLY relief I get is when I lie down - yes, if I put my head down and let the blood/fluids "run up," I am fine....for about 3 seconds and it's back.  PLEASE, if ANYBODY has any other info to get rid of this "rare but benign" problem, please let me know.  BTW, I lost 30 lbs. within a month (weight I could not afford to lose) when my nephew passed - I put the weight back on, plus some, and still, no relief - that was 5 years ago when I lost the weight - the PET happened well afterwards.