I am dealing with the same issue! I am a 33-year old woman and I started with the spots that showed up and went away about 5 years ago. The permanent spot started about 1 year ago. Bottom right side of my vision. I wonder if its related to my Depakote usage. I take that for epilepsy. What new medication are you taking?
God, I am sorry to hear abotu your situation. I have 3 in my right eye that stick around...like you said contrasts and blinds are a pain in the neck. I too hate the 'wait and see' reply because it is the doc's nice way of saying 'we really don't have a clue what its from'. Right after I got my biggest one in my right eye, it used to increase when I worked out. It has since stopped doing that and my optomistrist said that the spot was likely caused by looking at welding arcs or magafied sun spots as a kid (it catches up with you I guess). He did notice a slight "burned spot" on my retina that could explain it he said. He called them phosphanes or pressure phosphanes. The ones that come and go in an instant I've been told for years are another form of visual migraine (even without the headache) often brought on by stress and anxiety. I am a nervous person anyway so when I first got them I freaked out a little.
my spots? UGH. I hate them
They are ruining my life.
As for the way they manifest, they are exactly as you describe. When one appears, it looks like the afterimage of a camera flash, but it simply does not fade. It's most noticeable when I blink, and it glares in intensity. Over a period of a few days or weeks, the new spot generally diminishes to the point where it it just a blind spot on an amsler grid or ANYTHING with contrast. I had to take all the horizontal blinds out of my house for that reason. I can't stand to fill out any kind of form anymore, where there are lots of vertical and horizontal lines. Spreadsheets are a killer.
I have probably 20 or so spots in each eye. I can still read. My vision, overall, like yours is perfect. I've never required glasses. I am also 40 years old.
It's some crazy enigma that doctors either don't have the patience or skill to diagnose.
I've tried opthalmologists in australia and here in the states and neither has an explanation.
If I hear one more of them say "let's adopt a wait-and-see attitude:, i'll likely hurt someone...
I don't know if they are migraines, but I can get a massive headache on my left side (opposite the eye with the 'permenent' spot) that only sleep will cure sometimes. It doesn't happen very often. I notice no connection between the headache and an increase in spots. I have dealt with the fleeting camera flash like spots (that last a few minutes) in both eyes since I was 15 - I am now 40. My overall vision is strong. I did notice the 'permanent' spot show up just after I starting taking a regular medication so I speculate that it might contribute to it. Usually they disappear after a few seconds or maybe a couple days at most.
What are your 'spots' like? Do you see them more when you switch from a dark to light room like mine do?
I have had these spots - precisely as you describe - for almost 10 years now. I've had numerous doctors look at my eyes to no avail. Retinas look perfectly normal.
it's frightening and frustrating.
Do you suffer from migraines?
How long have you dealt with this issue? My regular doc and eye doc both have told me that not even doctors know why the body does some of the things it does but as long as what I am experiencing doesn't invade my quality of life too much that I should be happy with what I have been given. Everyday is a gift, I am thankful for each one. Thanks for posting this, it is nice to know I am not alone - I suspected I wasn't but it is nice to know.
You must realize that this is an entire field that every eye specialist has avoided because no one seems to know what the heck is going on with these people. This guy is not the only one. My wife has the exact same problem (I'm writing under her name) as do thousands of people around the world. If anyone could figure out what's happening to these peoples' vision then you'd have something significant to contribute to the AMA Journal. Imagine how frightened and confused these folks are. Btw, we live in Moberly and if you want to be the Doc who finally figured out this puzzle, I'm sure my wife would volunteer to be your test subject.
You know I've gone about as far as I can. Further would be speculation. See what the examining Eye MD says.
JCH MD
OK, thanks. Sensing you are saying that they seem neurological in nature. Is it a compelling factor that a spot has become 'permanent' in my field of vision after having similar ones come and go in both eyes for a number of years? Does this change hold any significance in your view?
Your symptoms do not suggest RD.
JCH MD
OK, R/M like retinal detatch and neurological like MS right?
Retina/Macular disease and neurological disease need to be excluded.
JCH MD
Thanks for the input. Any idea what my symptoms might point toward?
Yes it would be worth seeing a neuroophthalmologist. Find one near you at www.aao.org
JCH MD