pars planitis

[minnie906]

my 13yr old daughter was diag. with pars planitis 6 months ago. it took us 4 doctors before we found out what she had. she has vision loss already. she had injections done in her right eye and didnt help her vision at all. the doc. said the damage is done nothing he can do about it. so we had her left eye injected hoping she would get some vision back in that eye so far nothing. its really sad to see her struggle to see. is there anything else we can do for her. friends of ours was saying that maybe they can do transplants being she is so young.

[supermomma531]

I'm so sorry to hear about your daughter. I really do hope that she can be helped to regain her vision back. How did this happen? What is pars planitis? I cannot give you any answers or advice just because I have no idea of what this is, but I will be praying for you and your family. Best of luck for your daughter.

[minnie906]

their really not sure. the doctor said 1 in a million person gets this disease. pars planitis is kinda like aging of the retina. her regular eye doctor said he never seen it like this before in his 40 yrs. he said normally you get it in one eye. in which my daughter has it bad in both her eyes. its just hard to see her loosing her sight and how she struggles to read. the only way she can read is her having it right in her face. you would think she would go cross eyed thats how she can read.

[John C Hagan III, MD, FACS]

The incidence of pars planitis is much less than one in a million. In the practice of a retina MD it is relatively common. Use the search and archives feature to read about it and also go to www.emedicne.com and search pars planitis.

I would suggest that she be under the care of a retina Eye MD at a medical/university center.

Transplants do not help this some times intraocular implants of steroid are used.

JCH MD

[John C Hagan III, MD, FACS]

By saying its much LESS than one in a million I meant it is MORE common. 25% of the cases of uveitis at NIH and 3-5% of uveitis cases at clinics is common. Overall incidence perhaps one in 50,000.

Link to good discussion paste in your browser

http://emedicine.medscape.com/article/1208794-overview

JCH MD

[supermomma531]

Wow! I had no idea! I have never heard of anything like this before. I guess that there are things to be learned everyday of our lives. I hope that you can get the proper help needed to help your daughter. How is she adjusting to the situation? If you ever need to just talk, I am here. I love talking to new people. Meeting new people. You never know who can enrich our lives. I love coming on here even if I just read the entries, I find comfort in that just knowing and learning about new medical issues that I've never heard of and probably never would hear of if it wasn't for this site. I love to read and this is one thing that my issues can't take from me even if I'm in pain typing to read. Well thank you for responding to my question and curiosity. I wish you and your family the best of luck in getting all the proper help you'll need for your daughter. Take care,we'll speak soon. Have a great and wonderful day!  

[John C Hagan III, MD, FACS]

-

[minnie906]

she has seen many of doctors. she seen 4 ophthalmolgist. none of them new what she had.so i took her to a retinal specialist he is the one who diag. her with pars planitis. is there any doctors out there that specialize just in this disease? just how bad she has it i would go any where so she could get the help she needed. if there is help for her.the injections did bring the inflamation (inflammation) down but didn't improve her sight. the doctor she is doctoring with dont want to do surgery alot to do with her age. im just beside myself hoping someone out there has answers for us

[Jenn0030]

Yes, but there are very few...search at uveitis dot org (I spelled it out in case the web adresses are not permitted.