tumor behind eye

[momy42]

My 12 year old daughter was diagnosed with having a tumor behind her eye. The tumor is not touching the optic nerve,nor is it connected to the brain tissue. What are the options for removing the tumor before it causes damage to her eye?

[Giveypup]

This is a general ophthalmologist's recommendation not affiliated with MedHelp:  Nicholas Iliff, M.D. at Wilmer Eye Institute in Baltimore and David Tse, M.D, at Bascom Palmer are two of the BEST and most COMPASSIONATE orbital tumor specialists in the country, if not the world.  They saved the eye of a dear friend who had an exotic orbital tumor.  Experts in L.A., SF, Madison, Chicago, Iowa, Boston, Philadelphia, Texas, and Moorfield Eye Hospital in London were stumped about what to do other than exenterate her eye.  Dr. Iliff did the surgery (and was heroically aggressive about finding out the exact pathology of the tumor since that seemed to elude a half-dozen pathologists), and although she must be CT and MRI-scanned for the rest of her natural life, the belief is that this tumor was successfully excised with zero complications of strabismus.  

One more thing--both orbital tumor specialists are not aggressively surgically, at all, so they can tell you if the tumor has to be excised or whether it is merely safe to monitor.

Best of luck.  My heart goes out to you--I have three young children.

[elanasmommy]

My 3 yr old has had a tumor on her eye since birth, now it has grown behind her eye and causing noticable dropping, and starting to bother her. Our pediatric ophthalmologist has been seeing her every six months for the past two years, now says he cannot do this type of surgery needed,because it is now behind the eye. I am in the New York area, willing to go anywhere for my daughter to have the best treatment/surgery. Any advice or referrals would be greatly appreciated. thanks,
elanasmommy

[yash68]

dear sir
i recently 17 days back had a superior latral orbitotomy surgery to my right eye
now i am fine with the eye . swelling is still there near the eyebrow and eyelid
my problem is that in my forehead and partof the scull above the eye i am feeling nubmness
will it go with the time ? or should i have to take treatment for it?

[John C Hagan III, MD, FACS, FAAO]

Dr. Illiff would be a fantastic choice for anyone needing a orbital surgery. I do not know Dr. Tse but Bascom Palmer is World famous.

to yash68 the numbness usually leaves but it can take up to 6 months to feel normal.

JCH III MD

[Giveypup]

I concur with Dr. Hagan.  

Nicholas Iliff (at the Wilmer Eye Institute/Johns Hopkins Medical Center/Baltimore) would be my first choice for my family or me.  Please refer to my post above where I accompanied one of my best friends for sight-saving/life-saving surgery by Dr. Iliff.  Dr. Iliff did three successive surgeries--the last of which, a Jones tube implant, was done a week ago, with success.  You mentioned your willingness to travel anywhere for your daughter, and know that we have travelled from No. California to access Dr. Iliff's singular talents.

Good luck to you.

[AnnaE]

I wanted to make sure that you saw this recommendation:


by Giveypup


, Mar 20, 2008 01:10AM
This is a general ophthalmologist's recommendation not affiliated with MedHelp:  Nicholas Iliff, M.D. at Wilmer Eye Institute in Baltimore and David Tse, M.D, at Bascom Palmer are two of the BEST and most COMPASSIONATE orbital tumor specialists in the country, if not the world.  They saved the eye of a dear friend who had an exotic orbital tumor.  Experts in L.A., SF, Madison, Chicago, Iowa, Boston, Philadelphia, Texas, and Moorfield Eye Hospital in London were stumped about what to do other than exenterate her eye.  Dr. Iliff did the surgery (and was heroically aggressive about finding out the exact pathology of the tumor since that seemed to elude a half-dozen pathologists), and although she must be CT and MRI-scanned for the rest of her natural life, the belief is that this tumor was successfully excised with zero complications of strabismus.  

One more thing--both orbital tumor specialists are not aggressively surgically, at all, so they can tell you if the tumor has to be excised or whether it is merely safe to monitor.

Best of luck.  My heart goes out to you--I have three young children.