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what is my real problem

i have severe pain behind both of my eyes it first started will severe pain behibd my right eye and my face swelling seen a doctor was put on high dosese of prednisone when they tried to take me off the pain came back they decided it was thryroid eye disease they gave me radiation treatmen bend both eyes helped fir a ciuple months pain came back so they sent me to a neurologist to be diagnosed with migranes but he said no the problem was behind my eyes so now they say it is irbital pseuso tumors and auto immune disease but they don't know wht to do so they are going to send me to apain managment clinic would't it be better to find out wht is causing this can you help.
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233488 tn?1310693103
MEDICAL PROFESSIONAL
Your problem does not lend itself to seeking answers on the internet. You sound like you're in good hands. Get your information from the Wake Forrest MDs.

JCH MD
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Avatar universal
i am seeing specialists dr yatts at wake forest but know one knows what it is am i trying to find out any other information about this that i can   headache
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233488 tn?1310693103
MEDICAL PROFESSIONAL
Well it looks like you have orbital disese that was DX as thyroid but later changed to pseudotumor of the orbit. use the search feature and read the posts about orbital pseudotumor, also read the section on same on emedicine.

Its a serious problem and the cause is not understood. You need to be under the care of a neuro-ophthalmologist or a oculoplastic surgeon.

JCH MD
Helpful - 0
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