Poss. Molar Pregnancy...Now what? Scared!

[foreverpoppy9]

Hey ladies
I took a little while off from here but am back for some advice.
I had a suction d/c last wednesday and was told that the pathology report came back as a possible molar pregnancy. We are waiting for the chromosome studies to come back (they sent it off for furthering staining tests to see whats going on and wont' know untilthe 29th for the results) and my hcg was tested monday at its down to 1632 (doc isn't happy until its under 5).  For those of you who are familiar with molar pregnancy's and the abnormal cells that it produces that can develop into cancer.... i'm scared!!!!  Its such a waiting game every monday I will have my hcg draw to see what its doing. If it goes down my 15% each time it is better but if it doesn't go to under 5 we will have to do a full body cat scan and chest xray to see if those cells have migrated anywhere and developed into cancer.   HOw on earth am I going to wait until the 29th!  
The "C" word scares the crap out of me and I know its the worst case scenario but mydad has multiple myeloma so i've seen first hand what that can do to not only the person but the family... i'm scared... and if it is a molar and my hcg doesn't go down that means methotrexate therapy (chemo) scary!! will my hair fall out?

anyone have experience with this?

[ro650]

me and my partner have been trying 4 a baby 4 over a year,i suffered a molar pregnancy in that time, falling pregnant but then developing into a molar, does this mean we r both fertile?

[tones99]

I just wanted to say that I do understand the fear .. I had a potential molar last year and it is hard to not think the worst even if statistically it is very rare for cancer to develop.

I think the other ladies were just trying to help pull you out of your worry by giving the facts .. just remember that even if it does come back molar .. you may not even need the metho .. if your hcg keeps going down normally you can probably avoid it.  But I do have friends who have had the shots with no drama .. just the annoyance of having to wait before ttc again .. I do know that if your body responds well to the shots, some docs will only make you wait 6 months which is much more bearable

my heart goes out to you .. I know how stressful it is waiting for results and when you still have the pain of the loss to deal with it just feels like a low blow!  I hope you can heal and move on soon xx

[foreverpoppy9]

thanks for you message. you mind just goes to the worst and you can't help it. life hasn't been very fair in any part of our family's lives lately and so I just think that if it can go wrong it will go wrong lately :(  
i have more labs tomorrow and see my doc on the 29th to discuss our long term plan of things..
i appreciate the message..
thanks

[nshapland]

Hi Poppy, I am so sorry to hear about the possible molar pregnancy.  I would be scared, too, just because my mind usually goes to the worst case senario. After years of infertility, after losing a chromosomally normal baby after seeing the heart beat, after 5 pregnany losses, that's just where my head goes. I get it.
I don't know much about molar pregnancies but I'll be thinking of you and hoping for the best.
xo

[foreverpoppy9]

wow talk about people being harsh. i appreciate the info but really do you have to be like that... i'm sorry i'm scared!
apparently this is not the place anymore to seek advice or to tell your fears too... sometimes you just need people to hear your fears and support you.  i'm sorry i'm a person that thinks worst case scenario but if you had a peak into my life lately you wouldn't be wondering why i think worst case.   you truly have no idea what life is like right now and to add to it i'm going through all this crap.. so i'm sorry if i foudn the wrong place to write down my fears.... i won't any longer.
and please don't preach to me about chemo drip b/c i have TONS of experience with that in regards to my father and I know all about it. Sorry I'm not familiar with methotrexate!

[cutepoppy]

i totally agree with anniebrooke...i hav reported  many molar pregnancies of young females and not one of them progressed to malignancy...please stop worrying yourself...methotrexate is fine..dont worry

[AnnieBrooke]

OK, poppy, if you want to scare yourself a lot by splitting hairs, every drug you take is either chemo or hormones.  Methotrexate in response to an ectopic or abnormal pregnancy is given as two shots, not as a chemotherapy drip.  They are given one in each hip, if I remember.  It is a drug designed to kill undesired fast-growing cells.  It was created for something else (kidney or liver disease? can't remember) and they found it would also kill ectopic pregnancies that, by definition, are fast-growing cells.  It does nothing to your body, i.e., does not cause hair loss and it sometimes doesn't even work to stop the unwanted pregnancy cells.  It is not given in anything NEAR chemotherapy doses.  My mother-in-law went in for her chemo drip twice a week and had an intravenous line for something like three hours at a time.  This is simply not on the same scale, hardly even on the same planet.

Please stop scaring yourself with all this borrowed trouble about cancer.  Molar pregnancies do not happen that commonly, and even if it is molar, people do not develop cancer commonly as a reaction, and it is a treatable cancer if they do.  The main thing to know is, if it is molar, you can't try again to get pregnant for a year.  In fact, if I remember (haven't looked it up but I think I have it right) the only time there is an increased cancer risk is if someone does get pregnant right away again, after a molar.  For a lot of women, that wait is a much larger concern.  

Try to calm down.  You aren't going to lose your hair from methotrexate.

[foreverpoppy9]

yes methotrexate is a chemo drug its for trophoblastic cells (molar pregnancy). http://www.chemocare.com/bio/methotrexate_sodium.asp
i know its not a drip as my father has had mroe severe chemo than the methotrexate but it is still scary.
did you loss hair ? other side effects?

[AnnieBrooke]

I've had methotrexate and it's not chemo.  It's a shot, or two shots, not a drip that takes hours.  Read up on it so you don't catastrophize it in your mind.

Good luck, I hope it's not molar.  But they don't automatically turn into cancer.