Mullerian Agenesis.Help!

[Lost_]

Hi i am 17 years old soon turnin 18.& i have been diagnosed with Mullerian Agenesis. I dont get my period & i dont have a uterus.Therefore i cant have children,and it gets me really depressed soemtimes.I just have a bunch of questions hoping i can get an answer to.

Where does a mans sperm go?
I know i ovulate,but where do those eggs go?'
& will there ever be any hope for me and the other women.?

[megan129]

What did it feel like to have sex the first time? And how deep could he go in? Sorry these are personal but I'm using dilators and so far my canal is about 3 inches and I want to have sex with my boyfriend... I'm 18.

[tottie90]

SO DOES THE DIALATORS WORK ANY..I WAS READING ON THEM AND THEY SAIDIT HELPS!!!! SO THATS GOOD WE DONT HAVE TO GET THE SURGERY AND THATS NOT OUR ONLY OPTION!!!! DOES USING THEM HURT?????

[wishfuldream]

I have had sex without having surgery which is how I found out I had some type of issue. It is so0o0o0o0o0o0o painful. My doctor told me that the surgery they perform is not always successful. I use vaginal dilators and if you plan on having sex you should start out with them. If you need any help let me know.

[tottie90]

I HAVE mullerian agenesis ALSO IM 18 AND IT IS SAD....I NEVER HAD SEX BEFORE...AND WAS WONDERING IF ANYONE HAD SUGERY AND IF NOT HOW IS THERE SEX LIFE! AND  IM NEW TO THIS SITE AND HAVE OPEN ARMS AND EARS FOR ANY OTHER WOMEN WITH MY SADNESS!

[brittangeljb]

Hey. Im 23. I got diagnosed when I was 16. I never had to have surgery but I did use the dilators. They are somewhat effective. They just take time. Even if you do it regularly sex will still be slightly uncomfortable at first. If you have any other questions email me @ ***@****. My name is Brittany.

[sarinah]

I have mullerian agenesis too, I found out about a month ago. Since than iv been looking for someone to talk to. Can someone share their experience about dilating or surgery? does dilating really work?? Has anyone had the surgery?

thankz

[wanting4#1]

KSODA - just so you know, this is a post from last year!

[KSODA]

My 17 y/o daughter has the same or simular condition, we were referred to MASS General Hospital to discuss this with a Dr. Rafael Pieretti, who comes highly recommended and has experience with this condition.
http://www.youngwomenshealth.org/vaginalagenesis.html

Personally, I seldon take any one doctor's diagnois or recommendations as gold rule, thus is why people should always seek second, even at times a third opinion, especially when it comes to a major surgery which can, as any surgery, can come with some risks. Always know your options. But, from what I've heard and read, this doctor in Boston is a skilled and caring physician.

We have not met with him yet because we have Connecticut Husky insurance and her obgyn must first write a letter explaining why she is being sent out of State, and that her options are limited in CT, and this is not merely an elective a/o cosmetic surgical procedure.

Best wishes, we'll keep you in prayer, but PLEASE, don't ever be embarassed or feel that you are less of a woman.

[lEsLiiE]

hii...well ii understand what your going to im 16 nd ii just found out that ii have mullerian agenesis like 4 days ago it hurts to find out that you wont be able to go through a pregnancy which for me would be a wonderful thing to go through but their is adoption and a surrogate mother to carry your baby...just hang in their nd ii hope  that in the future the doctors an find something so we van go through a pregnancy

[neenie_baby]

I know what you are going through too.  I am 19 and have Mullerian Agenesis.  I also get depressed sometimes especially since I am currently in school studying to be a pediatrician.  Despite all that, I know I am still healthy and have people who love me.  I know adoption will never be the same as having a child of your own but if you are capable of rescuing and loving a complete stranger and be there for them, it will be the greatest feeling.  Stay positive. :]

[Toddy]

Hi Gal,
I believe i understand everything u are going thru. am 31years old also suffering from mullerian agenesis. the olnly thing i can tell u  is dont let men walk all over you. they are gud at making u feel inferior. i have fallen vitctim because my vaginal canal is very shallow therefore sex to me is next to impossible. its not easy for me to get surgery coz i come from east africa where technology is very behind. despite visiting several specilasit in my country they all seem to tell me that tht technologhy is yet to be in the country, u are a young gal live life to the fullest, i am   praying for a partner who will love and appreciate me for who i am i will remember you in my prayers..
take care and be gudluck to you.

Toddy.

[mommywa]

Without a uterus you are unable to carry your own children, however, you still ovulate which means you are still able to have biologic children.  This means you would have to use IVF and use a surragate to carry the child.
I don't know if you have a full length vagina in your situation or not, however I do know that there is surgery available to lengthen it if this is an issue so that BD is more comfortable.  My understanding is a pouch is created, which means the sperm may just come back out when done.
As far as your eggs....My guess is that your body just reabsorbs them, without any effect to you.
Uterus transplants are not available at this time, but still having an opportunity to have biological children is a real blessing.  Adoption is a wonderful thing as well.
Good Luck to you, and hope the future brings much happiness inspite of this challenge.