Aa
Dr. just called
Well, even if this doesn't work, at least I can say I have a great, caring doctor. He just called at 8pm to see how I was and tell me he was thinking about us. He reinforced that Monday was too early for a beta and he is expecting good news on Friday. I wish I could get on board with that. But I just can't seem to talk myself into it. I was so bummed today I didn't even get out of bed. I worked from home in my pajamas. Just doesn't seem fair-why is that I devote so much of my time to saving peoples' lives and I can't seem to be given a life.
I just read your second post...wow you know a lot!! Can you tell science wasn't my best subject...haha. By the way, I'm a 3rd grade teacher...thank God for the kids sakes...haha.
I guess I will ask if I have one or two gene mutations. He told me I must have a healthy diet for my homocysteine to not be high...yeah right if french fries is healthy then count me in...haha
I guess I will ask if I have one or two gene mutations. He told me I must have a healthy diet for my homocysteine to not be high...yeah right if french fries is healthy then count me in...haha
16 months feels really long when you are going through this....Every week feels like a month...I hope this IVF turns out to be the one for you! You seem like such a great person...you know I believe in Karma...I know not very scientific...but I think if you do enough good what goes around comes around and it sounds like you are doing a world of good...I'm sure it will happen for you soon!
Autism is tough....I'm teaching an inclusion class this year ( I have 6 IEP kids in the class). It's so hard for the kids who have high functioning autism b/c they know that they are different. A lot of them can do the academics but have a lot of trouble with social skills...that's the kids in my class this year. They also don't read social cues or get sarcasim...so it's tough to have them in a reg. ed. class. I really try to teach the children in the class that everyone's different...it's so nice to see the other kids in the class help eachother. I wish we could find a drug to help them...really I wish we could find a cure.....
Also thanks for explaining MTHFR for me....not sure if I have single gene or multiple? I guess I should ask that... I told him I'm taking prenatals still. He said he wants to give me something else to...
Autism is tough....I'm teaching an inclusion class this year ( I have 6 IEP kids in the class). It's so hard for the kids who have high functioning autism b/c they know that they are different. A lot of them can do the academics but have a lot of trouble with social skills...that's the kids in my class this year. They also don't read social cues or get sarcasim...so it's tough to have them in a reg. ed. class. I really try to teach the children in the class that everyone's different...it's so nice to see the other kids in the class help eachother. I wish we could find a drug to help them...really I wish we could find a cure.....
Also thanks for explaining MTHFR for me....not sure if I have single gene or multiple? I guess I should ask that... I told him I'm taking prenatals still. He said he wants to give me something else to...
I realized I missed the whole part about they gene mutation. You have genes (pieces of DNA) responsible for the production of MTHFR. If the DNA in those genes is alterd (read mutation) then you have can have an altered form of MTHFR. But it is the homozygous (2) gene mutation that typically results in the altered form of MTHFR that does not as efficiently remove homocysteine. The single mutation usually does not result in elevated homocysteine so chances are you have the single mutation. This could be an entire molecular genetics class. :) Basically it doesn't seem you have much to worry about.
MTHFR is an enzyme that metabolizes homocysteine. Basically that means it is a substance that eats another substance and by doing that gets it out of the body. High level of homocysteine are associated with blood clots in veins and arteries and thought to be associated with diseases like DVT and heart attacks. The single mutation (heterozygous) is fairly common. I think abot 40-50% of the population. Folic Acid supplementation is used to help remove homocysteine from the body. But if your is normal than you are fine.
One of my good friends has a some with mild autism. It is tough for her because b/c he is so smart and most of the time he is fine but other times he bangs his head againts things, repeat things multiple times and is a bully.
We tried for 8 months naturally and found out the end of January that DH has no sperm in his ejaculate. So we went straight to specialists. We did a round of IVF in April/May-failed. And now we in the home stretch of IVF#2. So I guess total is has been about 16 months. A long 16 months.
One of my good friends has a some with mild autism. It is tough for her because b/c he is so smart and most of the time he is fine but other times he bangs his head againts things, repeat things multiple times and is a bully.
We tried for 8 months naturally and found out the end of January that DH has no sperm in his ejaculate. So we went straight to specialists. We did a round of IVF in April/May-failed. And now we in the home stretch of IVF#2. So I guess total is has been about 16 months. A long 16 months.
Awwwwww thank you! You make me feel good after a hard day with a bit*h of a principal. Yeah, the kids are cute...a few of them have Autism, which I know a lot about...so it's going to be a great year. I have a lot of patience...
You sound so smart...that field is definately something I know nothing about...haha.
We are starting to try this month...we are going to bd every other day from Sat. on...my Dh is loving this...haha. I just spoke to the RE today and he told me I came back positive for MTHFR...he explained it but it made no sense....so I looked it up and still no sense...he wants to give me a script tomorrow ffor something I need to take...starting now. My homosystine is good though..whatever that means...haha.
If you don't mind me asking...how long have you been trying?
You sound so smart...that field is definately something I know nothing about...haha.
We are starting to try this month...we are going to bd every other day from Sat. on...my Dh is loving this...haha. I just spoke to the RE today and he told me I came back positive for MTHFR...he explained it but it made no sense....so I looked it up and still no sense...he wants to give me a script tomorrow ffor something I need to take...starting now. My homosystine is good though..whatever that means...haha.
If you don't mind me asking...how long have you been trying?
**wipes actual tears**
I am not sure what to say, but I appreciate you sharing that story. I am starting at a new job, a position i accepted after being with another company for almost 15 years. I started this week, and I have to say that I am struggling with some burnout AND the fact that I had other plans for what I wanted to do in life and I am kinda skating along for a paycheck, a fairly good one tho it is. It just is not a very important or life-changing job. I read your story and I hope you know how lucky you are to be able to work at something every day that makes a difference, and that guy is actual proof, huh? Amazing. I can't wait to finish this story for my daughter. I told her about you today, and now what a great ending of the story I have for her. Thanks for that. Will you let us know Friday or Sat or Mon or whenever your #s come back? I would love to share in your good news. Hugs.
I am not sure what to say, but I appreciate you sharing that story. I am starting at a new job, a position i accepted after being with another company for almost 15 years. I started this week, and I have to say that I am struggling with some burnout AND the fact that I had other plans for what I wanted to do in life and I am kinda skating along for a paycheck, a fairly good one tho it is. It just is not a very important or life-changing job. I read your story and I hope you know how lucky you are to be able to work at something every day that makes a difference, and that guy is actual proof, huh? Amazing. I can't wait to finish this story for my daughter. I told her about you today, and now what a great ending of the story I have for her. Thanks for that. Will you let us know Friday or Sat or Mon or whenever your #s come back? I would love to share in your good news. Hugs.
I am glad your HAMA came back negative. One of my drug programs is a mouse anti-human drug so we test all our patients for HAMA. I developed a HAMA test long ago, that's how I know about it. Glad af finally came. So do you get to start trying again?
A special ed teacher...now that is wonderful. It takes a very special person to do that. You help people that most don't even know how to relate to. That is so great!! And I know you must make the parents of those children extremely happy.
A special ed teacher...now that is wonderful. It takes a very special person to do that. You help people that most don't even know how to relate to. That is so great!! And I know you must make the parents of those children extremely happy.
A few times a year we have patients come in and tell us their story and how our therapy saved their life. There is never a dry eye in the house. The doctors are the front line, so I can imagine how emotional it must be for them. And oncology is tough. Without treatment we all know how it ends. Even with treatment we know how it will end for many. I was just at the oncology conference in June the majority of the world's oncologist get together to see what is new. They want to help their patients so much. It really is personal.
I have such an inspirational story...I started doing triathlons for the leukemia and lymphoma society about 5 1/2 years ago and we used to do these things called Mission Moments before we started practice. One time there was a fellow participant that stood to speak. He told of his non-hodgkin's lymphoma and how his oncologist told him all that could be done had and to make three lists 1. things he wanted to do in the next 6 months 2. Things he wanted to do in the next three months and 3. thing he wanted to do in the next month and suggested he start with the 1 month list, b/c he probably wouldn't make it much past then. (We were all waiting for him to say that he was coming up on his time) Well, a new drug had been released that had results beyond anything oncologists had seen. He started taking it and low and beyond he got better. Later that year he completed a marathon. He has since completed several triathlons with me and DH and he is still going strong. And that drug...it was a post-marketing program I was working on. And that right there is why I go to work every morning. Even when all this infertility stuff weighs me down (which it does regularly).. I remember, it could be worse.
If you ever make it to San Diego, you let me know, you come to my company for a visit.
I have such an inspirational story...I started doing triathlons for the leukemia and lymphoma society about 5 1/2 years ago and we used to do these things called Mission Moments before we started practice. One time there was a fellow participant that stood to speak. He told of his non-hodgkin's lymphoma and how his oncologist told him all that could be done had and to make three lists 1. things he wanted to do in the next 6 months 2. Things he wanted to do in the next three months and 3. thing he wanted to do in the next month and suggested he start with the 1 month list, b/c he probably wouldn't make it much past then. (We were all waiting for him to say that he was coming up on his time) Well, a new drug had been released that had results beyond anything oncologists had seen. He started taking it and low and beyond he got better. Later that year he completed a marathon. He has since completed several triathlons with me and DH and he is still going strong. And that drug...it was a post-marketing program I was working on. And that right there is why I go to work every morning. Even when all this infertility stuff weighs me down (which it does regularly).. I remember, it could be worse.
If you ever make it to San Diego, you let me know, you come to my company for a visit.
SD..WOW you have such a great job...that's so great of you to help people...we need more people in the world like you. I wish I could do something like that...I'm a Special ed. teacher. When I first got out of college I applied for a job working with patients at Sloan Ketering in Manhattan..but I didn't get the job. That explains how you know so much about my anti-mouse antibody test...it came back negative by the way...but I got af on Mon. so I'm happy my RE still wants to check my blood for HCG tomorrow.
Good luck to you and try to stay positive...I know it's hard but they said that Mon. was too early to test...hang in there and good luck!
Good luck to you and try to stay positive...I know it's hard but they said that Mon. was too early to test...hang in there and good luck!
Sweet!!!
I actually had a tried and true, set in stone, all business oncologist who had an older patient with carcinoma. He had treated him and linked him with every protocol he fit the parameters for. I worked on this account for many years and trans'd for this MD many times. This patient came back in, an elderly man, with a relapse and they had nothing left to give him. The MD was dictating and putting in the chart how this patient had run out of options and was going palliative and completely understood his prognosis but had thanked the MD and the hospital staff b/4 leaving as his cancer had reunited him with his estranged son and he would live the rest of his days being able to spend time with his son and he was THANKFUL for everything....and this MD dictated the whole report, crying.
I think your job is amazing, and I wish you even more luck now on Friday after learning more about you. If I ever come to LV to visit my family, I may stalk you to shadow you at your job....
**sitting in wonderment with a bubble above head filled with SDscientist sitting at her desk saving peoples lives**
I actually had a tried and true, set in stone, all business oncologist who had an older patient with carcinoma. He had treated him and linked him with every protocol he fit the parameters for. I worked on this account for many years and trans'd for this MD many times. This patient came back in, an elderly man, with a relapse and they had nothing left to give him. The MD was dictating and putting in the chart how this patient had run out of options and was going palliative and completely understood his prognosis but had thanked the MD and the hospital staff b/4 leaving as his cancer had reunited him with his estranged son and he would live the rest of his days being able to spend time with his son and he was THANKFUL for everything....and this MD dictated the whole report, crying.
I think your job is amazing, and I wish you even more luck now on Friday after learning more about you. If I ever come to LV to visit my family, I may stalk you to shadow you at your job....
**sitting in wonderment with a bubble above head filled with SDscientist sitting at her desk saving peoples lives**
Pathology is fascinating. I just recently got involved with overseeing some pathology testing. It is amazing how much you can learn from such a tiny piece of tissue. It is really a toss up b/w the lab and the desk. The lab is very focussed and when I was exclusively in there I didn't get to be part of the big picture. Now I get to be part of the whole process which I love. I don't do much work directly with patients. I work as part of a clinical team-MDs, PhDs, regulatory reps, statisticians, trial coordinators, etc. I am more involved in designing protocols and determining what we need to test to monitor patient immune function while dosing, efficacy of the drug, and response of the patients and their cancer to the drug. So even though I don't meet the patients directly, I pretty much know exactly what is going on in their bodies and with their disease. When I find out someone dies or is preogressing it is still a saddening loss for all of us that work on these studies. But one of the drugs I am working on now looks so promising and we think it is going to be the new standard of care for one of the adult types of leukemia. It is so exciting. I also love to meet people that have taken one of my company's products when they were told there was no hope and here they are years later alive and well. You are right...I am lucky to do what I do. I always thought I would go back and become an MD, but I got hooked on the science side (and I didn't want to 250K in debt).
Girl, i've been thinking of you, and i am so sorry you are going thru this hard times.......I know your pain, i know how bummed out one can feel.......I just wanted to let you know i am praying for you and that my thoughts are with you and your hubby.......these are things that no one deserves to go thru, and really wish i could do something from this end to help ease your pain.....
Just know you are not alone and we are all here for you ok???
Please let us know whatever outcome you find on friday! we'll be anxiously waiting!!!
lots of love!!!!
Just know you are not alone and we are all here for you ok???
Please let us know whatever outcome you find on friday! we'll be anxiously waiting!!!
lots of love!!!!
Ohhhh....my ultimate goal in life would have been to be a pathologist. I am a med transcriptionist and my specialty is oncology (don't roll your eyes...I know our reputation as being dumb typers). I got interested during human biology and microbiology classes in college. I started an RN program b/c i wanted originally to be an oncology RN and then switched my emphasis to L&D. I never finished the program as I was going later in life and my day job paid well and I did not want to quit until I had to - it was difficult to think of giving up the bucks and living how I used to in my early 20s. How interesting. You lucky dog. Interesting, interesting, interesting work. I so admire your job. So are you more enjoying your job now or in the lab? Do you work directly with patients at all...or mostly protocol and trial development and follow up?
Thanks!!
I don't mind you asking. I am an oncology scientist. I specialize primarily in lymphoma and leukemia, but also do work on solid tumors like breast, ovarian, lung,etc. I used to be in the lab a lot, but have since turned more into a desk scientist-which really just means other people do the labwork I oversee and I work more directly on clinical trial protocols and data.
I don't mind you asking. I am an oncology scientist. I specialize primarily in lymphoma and leukemia, but also do work on solid tumors like breast, ovarian, lung,etc. I used to be in the lab a lot, but have since turned more into a desk scientist-which really just means other people do the labwork I oversee and I work more directly on clinical trial protocols and data.
Sounds like a plan...good luck Friday. I hope you surprise yourself and get great news. We are pulling for you!!!
What kind of scientist are you, if you dont mind me asking? I always thought you were a South Dakota scientist until I ran over your name!!!
What kind of scientist are you, if you dont mind me asking? I always thought you were a South Dakota scientist until I ran over your name!!!
I am actually going to get out my pajamas, take a shower (I think it is in order after yesterday), and go into my office today. I didn't test this morning b/c I didn't want to see a negative. I am going to test on Friday before I go in for my blood draw b/c I don't want to have to wait all day to get the beta answer from the doctor.
Seems the spotting and cramping has stopped for the moment.
pcarsey-Thanks. I needed that! :)
Seems the spotting and cramping has stopped for the moment.
pcarsey-Thanks. I needed that! :)
Awww!! I love your doctor!! I love his attitude and his caring ways with his patients! Mine is the same. There are 3 doctors in the same wing at my doctors office and all 3 are so fantastic! When I had my MC one of the other doctors stopped in my room to see if I needed anything, and she wasn't even my doctor!! How Sweet!! I love doctors like that.. You know those are keepers! I Know how you feel about things not seeming fair, and it does s**k that you can't seem to have children.. just yet.. keep that in mind. I look it as though there are TONS of babies arguing over who gets to come to you!! There were SO MANY that they had to have a flipping coins contest and it's still going on.. SO the winner will come to you!!! And they will be so proud of their mommy for waiting so patiently and doing a great job at saving peoples lives in the process!!
I will Keep praying for you!! Good Luck.. and hurry up lil one.. mommy is losing patience!! lol..
xoxo
~Patty
I will Keep praying for you!! Good Luck.. and hurry up lil one.. mommy is losing patience!! lol..
xoxo
~Patty
What a great doctor. I'm looking forward to Friday ;)
Good luck lady, chin up and get out of bed lazy bones...LOL
Good luck lady, chin up and get out of bed lazy bones...LOL
I know it's easy to say, but try to stay busy to keep your mind off of the wait. One thing that's so true about life is that it's not always fair. Your time is coming to be blessed with a life.
Good luck!
Good luck!
My prayers are with you !! Keep up your faith - prayers do get answered!! :0)
Well, it has to be extremely re-assuring that he is positive about Fridays test...That makes me raise my eye brows to hmmm, he really thinks you're pregnant. That would be fantastic, maybe you should stop testing??? :) get out of your jammies and GO TO WORK (you'll feel better) ;)
Wow, you really do have a caring doctor! Trust was he say's, after all, he is the specialist. GOOD LUCK!!!!!
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