anybody been involved in the alderhey organ retention scandal?

[marialou]

iv never spoke to anybody and this is the first time iv tried,iv buried my daughter 3 times over 12 yrs and had to wait all over christmas to find out if it would be 4. thankfully iv just been told no but i dont think iv even tried to deal with it when all these yrs i thought i have

[marialou]

i thankyou from the bottom of my heart for your kind thoughts and words,its so comforting to feel such compassion,my family and friends also greive and its so hard to talk to them as it hurts them so much too,and also its hurts them seeing me devestated so i cant let them know how much it kills me inside. i miss her so much. i feel like im the barer of bad news as my 14 yr old daughter maria has the same rare genetic syndrome with so many complications and i have to be strong for her.but i always live with the possibility of...i cant even fkn think it let alone say it,i apologise so much for swearing but i feel so angry.i dont swear,but i feel like exploding thinking i cant do anything to help my daughter.ive searched everywhere and everything and educated myself on everything that she has wrong because doctors dont know..i dont beleive in hopeless or giving up.not where my maria is concerned but its a battle. i thankyou again and my thoughts and prayers are also with you and your family x

[Judy246]

My deepest condolences on the passing of your child. I can't even begin to imagine  what you and your family are going through and the thought of having to rebury anyone in my family is just unimaginable. Please find comfort in knowing the your precious daughter is in peace and no matter what happens she is in peace and not even death can seperate the love or bond that you have with each other.  That love is eternal.

Also, I am a daughter who has loss her mother, so I can truly say that your precious daughter would not want you to suffer in anyway and she is with you in spirit.

If you need to talk, we are a very caring group here who have experienced the ultimate that life can throw at us...the death of a loved one.

Your and your family are in our thoughts and prayers....Judy

[caz62]

I'm so sorry for your terrible loss, I can't begin too imagine what you've been through. I've not lost anyone involved in this scandal, but have recently lost my mum. I hope thats the end of this scandal for you so you can grieve for your daughter properly and let her rest in peace. I have found this forum very helpful and everyone is very supportive. Caz