Chronic headache, Blurred Vision, Ringing in ears

For at least 6 years I have suffered from chronic daily headaches. They are in the front/top of my head, forehead, temples and I have pain behind my eyes. I also have a constant ringing in my ears and have really bad restless leg syndrome (Doctors typically ask about tingling sensations, etc). I never feel dizzy, nauseous, or lightheaded. I typically wake up every day with a headache and the pain varies throughout the day but it is always there. I'm extremely lethargic, never feel rested upon waking and it is really hard for me to concentrate. Previous doctors thought that headaches were a symptom of my depression and anxiety but nothing ever helped the headaches and even though i no longer suffer from depression and anxiety, the headaches still persist. In the past year I noticed my vision getting worse and last spring I was prescribed glasses for astigmatism. However, over the past 2 months or so the headaches have gotten a lot worse and so has my vision. I only wear my glasses when needed and I find myself wearing them a lot more often. They sometimes do not help my vision and they never relieve any of the pain. A few days ago I went to the hospital with the worst headache I have ever had and the blurriest vision I have ever had. They did a urine test, blood tests and a CT Scan and everything came back normal. They gave me stronger pain medication but my headaches are never relieved by any kind of pain medication. I am lucky if it just takes the edge off. I have talked to many doctors about this but none have any idea what could be wrong. I am currently waiting for an appointment with a neurologist but I'm curious if anyone else has experienced the same thing as I have. Also, these are not migraines as light and sound never bother me.

[Dr. Kokil Mathur]

Hi!
I am sorry to hear about your health. The first thing that I would ask you to rule out is benign intracranial hypertension. This happens due to impaired CSF absorption. A generalized throbbing headache worst felt in the morning and last thing at night, and may persist in varying degree throughout the day. This headache is generally relieved on standing (consistent with raised intracranial pressure). It is aggravated by straining, coughing or a change in position. This headache may be accompanied by various neurological symptoms such as dizziness, numbness, loss of vision, loss of hearing, tinnitus etc, all of which are temporary.
The second most common symptom is visual defect, which you too have. Antianxiety medications are helping you somewhat; this again goes in favor of this problem.
You need a prompt evaluation by a neurologist. Hypothyroidism, hypoparathyroidism, adrenal insufficiency are a few things I would recommend you get investigated for. These can precipitate BIH. A spinal tap is a must both to diagnose the condition and to treat it.  
The chronic daily headache (CDH) can be the primary type—without any cause. One simple reason for daily headaches is compression of cervical spinal nerves. Another reason is TMJ, especially if the headache starts with chewing. The third reason could be severe acidity with or without GERD. The CDH could also be secondary to trauma, raised intracranial hypertension, high blood pressure, temporal arteritis etc. Hence all these need to be ruled out.  If the headache lasts for less than 4 hours then it could be a chronic cluster headache or a chronic paroxysmal hemicranias. If it lasts for more than 4 hours it could be chronic tension headache, chronic migraine or altered migraine or hemicranias continua. Indomethacin is the drug of choice in hemicranias continua. In fact the diagnosis is considered confirmed if a patient responds to Indomethacin. If you are a female and in menopausal age group then consult a gynecologist and rule out hormone imbalance and low estrogen as the cause of your headaches. Since a confirmed diagnosis cannot be given on net please discuss these possibilities with your doctor once. You may need some tests for confirmed diagnosis which may include blood tests, MRI (CT you had), spinal tap etc.
Take care!