Noncoronary sinus of valsalva aneurysm??

[albertajatt]

Hi,

I am a 32 year old, 5'11', 190lbs male, with history of mild generalized anxiety. My parents tell me that I had heart defect when I was little, at that time doctors told them that it might go away by itself as I grow or it may require a surgery, They don’t recall any echo or xray, but were told later that it is fixed. This was in India 32 years ago, so no records are available. From what they remember, ongoing Diarrhoea was one of the symptom and doctors told them that I had murmur or a hole in heart.

A couple of months ago, I had the echocardiogram done due to some palpitations. Most of the sectins in 2 pages results report  had “all normal” kind of statements except a couple of them reading something like “…trivial regurgitation”. But, one section plus the summary titled as “impression” read  “The noncoronary sinus of valsalva has an aneurysmal appearance. No evidence of rupture. The alternative possibility of an abnormality of the membranous part of the interventricular septum (without shunt), or and abnormality of the adjacent septal leaf of the tricuspid valve, considered to be unlikely. I suggest further assessment by CT and transesophageal echocardiography.”

My BP is normal, only another thing she noticed is the minor murmur. She described that as an extra beat or elongated second beat. According to her, lot of people have this.

She then arranged the CT scan (done) and transesophageal echocardiography (scheduled). When I called her office today, nurse confirmed that doctor has received the CT results but will be discussing this with me only after she receives the transesophageal echo results, which is more than 2 weeks away. I called again but received the same response.

So, it seems to be evident that I have a heart problem, don’t know what it is, how serious it is?  what an “aneurysmal appearance” seen in echo could be? Could it be related to my childhood problem? Why my doctor is not sharing the CT results with me?

Please help.
-AJ

[RK1976]

Hi AJ - Did you get a good answer from your doc? I hope it turned out to be nothing. I am a 31 year old male, 5 foot 11 inches, 170 pounds, and also with a history of generalized anxiety disorder. I was diagnosed today with the same thing that you were - aneurysmal dilatation of the non-coronary sinus of valsalva, based on an echocardiogram. I'm going in for a transesophagael echo soon to look more closely at it to try to make a more definite diagnosis. Based on what the doc said and what I've read, this requires surgery if it ruptures, or if you catch it prior to rupture and it is either of a certain size or growing at a certain rate. Anyway, I hope you are doing well and wish you the best of luck. RK

[albertajatt]

any comments please :(

[albertajatt]

Any one..??

Also, is the dialated aorta root and sinus of valsalva aneurysm same thing ?

Please help.