Heart Disease Community
Postural Orthostatic Tachycardia Syndrome
About This Community:

This patient support community is for discussions relating to angina, angioplasty, arrhythmia, bypass surgery, cardiomyopathy, coronary artery disease, defibrillator, heart attack, heart disease, mitral valve, pacemaker, PAD, stenosis, and stress tests.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Postural Orthostatic Tachycardia Syndrome

I was recently diagnosed with Postural Orthostatic Tachycardia Syndrome, a rare heart condition. I live in Arizona and cannot find a specialist. I don't mind traveling to a different state...does anyone know of any pots specialists close to Arizona?
Blank
967168_tn?1343732745
check out the national dysautonomia research foundation's site as well as Dysautonomia information network and the Dysautonomia forum here; in each place there are doctor's listed and information for reading, plus you'll find POTS to be a very common ANS problem so you'll get lots of support and information.

If you're in AZ; Mayo clinic is there but I don't think it has an autonomic testing center much like the one here in FL; they can do some tests but not the full set you'll need.  I've been referred to Mayo Clinic in OH and to Vanderbilt in TN, but it's such a trip I haven't gone yet.

If I had the means and the way I would go see the main man himself - Dr. Blair Grubb he's at the Medical University of Ohio; but others have said it takes awhile to get in to see him.  After you see him and his staff then they can coordinate care with your local doctors.

good luck; let me know if you have any questions =)
Related Discussions
8 Comments Post a Comment
Blank
Avatar_f_tn
If you post this on the autonomic dysfunction site they have names and places of drs who treat this. I believe Mayo Clinic has a clinic in Arizona that's treats this.
I also have pots so I hope you get a good Dr that can help you.
Blank
Avatar_f_tn
Thank you! Im already a patient at Mayo. I see a neurologist that said they don't have one there. but I will post on the autonomic dysfunction site!
Blank
967168_tn?1343732745
check out the national dysautonomia research foundation's site as well as Dysautonomia information network and the Dysautonomia forum here; in each place there are doctor's listed and information for reading, plus you'll find POTS to be a very common ANS problem so you'll get lots of support and information.

If you're in AZ; Mayo clinic is there but I don't think it has an autonomic testing center much like the one here in FL; they can do some tests but not the full set you'll need.  I've been referred to Mayo Clinic in OH and to Vanderbilt in TN, but it's such a trip I haven't gone yet.

If I had the means and the way I would go see the main man himself - Dr. Blair Grubb he's at the Medical University of Ohio; but others have said it takes awhile to get in to see him.  After you see him and his staff then they can coordinate care with your local doctors.

good luck; let me know if you have any questions =)
Blank
967168_tn?1343732745
oh my...sorry my brain lol Mayo Clinic = MN ....I think; my mind just went into a fog and for the life of me I can't think of where Mayo is :(  I was thinking Cleveland Clinic = OH.
Blank
Avatar_f_tn
Thank you so much! Im going to check out Dr. Grubb and see if I can see him!!
Blank
967168_tn?1343732745
That's great to hear...please let me know how it goes with him; I'm drooling with jealousy hehehe
Blank
Avatar_f_tn
I just made my appointment today, its a long year wait so Ill let you know in a year how it went haha
Blank
967168_tn?1343732745
good deal =) you may want to tell them that if there's a cancellation you'd like to be notified if you can  make arrangements to get in that quickly
Blank
Post a Comment
To
MedHelp Health Answers
Recent Activity
1236893_tn?1394988190
Blank
Things Killing Your Gut
19 mins ago by gymdandee
Avatar_f_tn
Blank
hsum4 is ... Comment
1 hr ago
Avatar_f_tn
Blank
ejoli commented on orphanedhawk's status
14 hrs ago
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Heart Disease Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Heart Disease Answerers
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
63984_tn?1385441539
Blank
Flycaster305
97303, OR
Avatar_f_tn
Blank
skydnsr
212161_tn?1391090750
Blank
heartfluttersflyawayplz
hoschton, GA
612551_tn?1247839157
Blank
Jerry_NJ
NJ