Heart Disease Community
Postural Orthostatic Tachycardia Syndrome
About This Community:

This patient support community is for discussions relating to angina, angioplasty, arrhythmia, bypass surgery, cardiomyopathy, coronary artery disease, defibrillator, heart attack, heart disease, mitral valve, pacemaker, PAD, stenosis, and stress tests.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Postural Orthostatic Tachycardia Syndrome

I was recently diagnosed with Postural Orthostatic Tachycardia Syndrome, a rare heart condition. I live in Arizona and cannot find a specialist. I don't mind traveling to a different state...does anyone know of any pots specialists close to Arizona?
Blank
967168_tn?1343732745
check out the national dysautonomia research foundation's site as well as Dysautonomia information network and the Dysautonomia forum here; in each place there are doctor's listed and information for reading, plus you'll find POTS to be a very common ANS problem so you'll get lots of support and information.

If you're in AZ; Mayo clinic is there but I don't think it has an autonomic testing center much like the one here in FL; they can do some tests but not the full set you'll need.  I've been referred to Mayo Clinic in OH and to Vanderbilt in TN, but it's such a trip I haven't gone yet.

If I had the means and the way I would go see the main man himself - Dr. Blair Grubb he's at the Medical University of Ohio; but others have said it takes awhile to get in to see him.  After you see him and his staff then they can coordinate care with your local doctors.

good luck; let me know if you have any questions =)
Related Discussions
8 Comments Post a Comment
Blank
Avatar_f_tn
If you post this on the autonomic dysfunction site they have names and places of drs who treat this. I believe Mayo Clinic has a clinic in Arizona that's treats this.
I also have pots so I hope you get a good Dr that can help you.
Blank
Avatar_f_tn
Thank you! Im already a patient at Mayo. I see a neurologist that said they don't have one there. but I will post on the autonomic dysfunction site!
Blank
967168_tn?1343732745
check out the national dysautonomia research foundation's site as well as Dysautonomia information network and the Dysautonomia forum here; in each place there are doctor's listed and information for reading, plus you'll find POTS to be a very common ANS problem so you'll get lots of support and information.

If you're in AZ; Mayo clinic is there but I don't think it has an autonomic testing center much like the one here in FL; they can do some tests but not the full set you'll need.  I've been referred to Mayo Clinic in OH and to Vanderbilt in TN, but it's such a trip I haven't gone yet.

If I had the means and the way I would go see the main man himself - Dr. Blair Grubb he's at the Medical University of Ohio; but others have said it takes awhile to get in to see him.  After you see him and his staff then they can coordinate care with your local doctors.

good luck; let me know if you have any questions =)
Blank
967168_tn?1343732745
oh my...sorry my brain lol Mayo Clinic = MN ....I think; my mind just went into a fog and for the life of me I can't think of where Mayo is :(  I was thinking Cleveland Clinic = OH.
Blank
Avatar_f_tn
Thank you so much! Im going to check out Dr. Grubb and see if I can see him!!
Blank
967168_tn?1343732745
That's great to hear...please let me know how it goes with him; I'm drooling with jealousy hehehe
Blank
Avatar_f_tn
I just made my appointment today, its a long year wait so Ill let you know in a year how it went haha
Blank
967168_tn?1343732745
good deal =) you may want to tell them that if there's a cancellation you'd like to be notified if you can  make arrangements to get in that quickly
Blank
Post a Comment
To
Top Heart Disease Answerers
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
63984_tn?1385441539
Blank
Flycaster305
97303, OR
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
Avatar_f_tn
Blank
skydnsr
612551_tn?1247839157
Blank
Jerry_NJ
NJ
Avatar_m_tn
Blank
Occupant
IL
MedHelp Health Answers
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Recent Activity
Avatar_f_tn
Blank
karmagirl222 commented on Abdominal Aortic Aneu...
1 hr ago
1806721_tn?1388096157
Blank
Pregnancy Journal (week 4)
23 hrs ago by Annie_777
1806721_tn?1388096157
Blank
Annie_777 pregnant with JFX due on 6/... Comment
23 hrs ago
Heart Disease Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Heart Disease Answerers
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
63984_tn?1385441539
Blank
Flycaster305
97303, OR
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
Avatar_f_tn
Blank
skydnsr
612551_tn?1247839157
Blank
Jerry_NJ
NJ
Avatar_m_tn
Blank
Occupant
IL