Would like to talk to any other teenage girls with truncas arteriosis. I have been living with this heart defect all my life and am experiencing problems beause of daily doses of Coumadin. I am turning 19 years old this month. You can email me if you'd like.
kaitlyn.***@****
Hi, I am the mother of a child who has truncus arteriosus type 1. Although the diagnosis is scary, it doesn't mean that your child can't lead a normal life. My daughter is now 13 years old and has had 3 repairs. She participates in everything she wants to do including tennis, girl scouts and goes to regular public school. These kids have a fire in them that is amazing.
There is also a wonderful online support group through Yahoo groups called "Ourtruncus arteriosuskids" If you have any questions, please feel free to ask.
Here's a website that explains it: http://www.americanheart.org/presenter.jhtml?identifier=1677