Heart Disease Community
Truncus Arteriosus
About This Community:

A community of people with Heart Disease to guide and support your heart-health journey. Ask a question, join a conversation, share experiences: symptoms, nutrition, and management.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Truncus Arteriosus

My Best friend's brother had a son 2 months ago... Now he's been diagnosed with a serious Congenital Heart Defect!!
I have most of  the information about the problem from the internet and also the family's consulting some cardiologists here...
But I need another opinion as to what the course of action to correct the defect should be. Everything there is to know actually!!!!
I know it may not be accurate without the actual reports, but do help me please.

The child is 2 months old(full term cesarean delivery) as of 12/11/2008 and weighs 3.5 kg

He has had Dyspanea and difficulty in feeding since birth and his condition has deteriorated since birth.
He has had one episode of cyanosis with increased pulmonary blood flow.

According to his ECHO, he has "Truncus arteriosus", which is a rare and complicated birth defect.

It is Type II
-> No branch pulmonary artery stem
-> Small Atrial Septal Defect
-> Large Ventricular Septal Defect
-> Right sided aortic arch
-> No stenosis/regurgitation in the truncal valve

->There's something written about LV & RV which isnt quite legible.

Well thats what his initial report says
Please let me know so that I can help my friend's family to understand the problem and the solution better.
Related Discussions
3 Comments Post a Comment
Blank
592969_tn?1248329005
Here's a website that explains it:  http://www.americanheart.org/presenter.jhtml?identifier=1677
Blank
Avatar_f_tn
Hi, I am the mother of a child who has truncus arteriosus type 1.  Although the diagnosis is scary, it doesn't mean that your child can't lead a normal life.  My daughter is now 13 years old and has had 3 repairs. She participates in everything she wants to do including tennis, girl scouts and goes to regular public school.  These kids have a fire in them that is amazing.  

There is also a wonderful online support group through Yahoo groups called "Ourtruncus arteriosuskids"  If you have any questions, please feel free to ask.
Blank
Avatar_f_tn
Would like to talk to any other teenage girls with truncas arteriosis. I have been living with this heart defect all my life and am experiencing problems beause of daily doses of Coumadin. I am turning 19 years old this month. You can email me if you'd like.

kaitlyn.***@****
Blank
Post a Comment
To
Top Heart Disease Answerers
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
Avatar_f_tn
Blank
skydnsr
63984_tn?1385441539
Blank
Flycaster305
97303, OR
Avatar_m_tn
Blank
Occupant
IL
11548417_tn?1423126466
Blank
Ger57
Netherlands
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Recent Activity
Avatar_m_tn
Blank
Lucky_M commented on When Your Cold Is Not...
9 hrs ago
566249_tn?1294661218
Blank
GardeniaDreams very tired. Comment
19 hrs ago
13573062_tn?1430556631
Blank
Dr_JCLU uploaded new photos
May 02
Heart Disease Community Resources
RSS Expert Activity
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
Top Heart Disease Answerers
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
Avatar_f_tn
Blank
skydnsr
63984_tn?1385441539
Blank
Flycaster305
97303, OR
Avatar_m_tn
Blank
Occupant
IL
11548417_tn?1423126466
Blank
Ger57
Netherlands