ascending aortic aneurysm-help

Hi everyone, I am 45 y/o female with 1997 surg Ross procedure where they take your pulm valve and use it to replace your leaky, regurgitating aortic valve, then give you a cadaver (dead persons donated tissue) valve for your pulmonary position. Dx's are bicuspid valve disease,congenital...found in 1996. My major concern now is the cardiologist is telling me I have enlarged aortic root at 6.3 cm.  My father died from AAA at age 60 from rupture of same. They found his AAA 2 yrs prior at which he was at 6.0cm. We don't know the size at rupture.  I work 2 jobs, shortness of breath, lifelong nonsmoker nondrugger. They are sending me tomorrow for CT Abdomen w/contrast one week after Echo showed the 6.3cm dilatation.  Does this sound like good course of action....AND.....those who have had surgery for AAA any comments/suggestions are welcomed.
Thanks     Milo_1


This discussion is related to aortic root.

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by milo_1


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milo_1
Female
MD
Member since Jul 2008
Mood: milo_1 is ANXIOUS
  



, Jul 03, 2008 12:01AM
To: moderator
I wasnt sure if I posted this in the proper forum. If it is posted improperly, please re post for me in proper category. Thanks, Milo_1
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by Momto3


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Momto3
Female, 50 years
Raleigh - NC
Member since Feb 2003
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, Jul 03, 2008 09:21AM
Hi milo_1,

Your post is fine here.  Congrats on your successful Ross procedure!!  As for the AAA, given your family history, I can certainly understand your concerns.  Has the doctor suggested surgery at this point?  Or, are they waiting for the additional test results?

I'm sorry I can't help much.  I am not too familiar with treatment options for AAA.  I'm assuming your doctor is being very thorough and taking into account your father's history.  Hope the test goes well.  Let us know what's going on and how you're doing.

Is the shortness of breath a new symptom?
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by milo_1


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milo_1
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, less than a minute ago
To: all
Just got a call from my cardiologist. Said the aneurysm is an ascending aortic aneurysm, 6 cm in size, and that I also have (again, be sure to read original post)severe aortic regurgitation again. He set me up with a surgeon on the 18th of July. I dont know what else to say. Someone please respond who has had ascending aortic aneurysm?
Thanks,
Colleen

[pbanders]

I had my ascending aortic aneurysm grafted in 2004. I have no idea of who you are seeing for your surgery, but be aware that you want someone who has vast experience with this surgery to work on you, not someone who does a few of these a year. I recommend if you haven't done so already, that you contact the Cleveland Clinic to review your case, or contact Dr. Craig Miller at Stanford, or Dr. Vincent Gaudiani at Sequoia (CA).

[van6308]

If its your aortic root it is not an AAA.... A triple AAA ia an abdominal Aortic aneurysm. An aortic root aneurysm is a thoratic aneurysm.  I had the same problem and had mine repaired at the cleveland clinic in ohio. It was 5.4cm.  I would highly reccommend you get surgery right away. Doctor Lars Svennson did mine he has a perfect record in this procedure. 280 something procedures with no deaths.


goo luck
Mike

[emmapop]

please could you explain what your symptoms are?