Heart Disease Community
cardiac preload failure
About This Community:

This patient support community is for discussions relating to angina, angioplasty, arrhythmia, bypass surgery, cardiomyopathy, coronary artery disease, defibrillator, heart attack, heart disease, mitral valve, pacemaker, PAD, stenosis, and stress tests.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

cardiac preload failure

Hello, After 10 years of trying to get an answer, I finally got a diagnosis of cardiac preload failure, low VOxmax, and decreased AT. I have shortness of breath, palpitations/heart racing, chest pains, fatigue, lightheaded.  Many many echos--three with bubbles.  A PFO showed up on one. Normal cardiac cath--they couldn't see the PFO during the cath. Normal EKGs. Halters normal except for mild sinus tachycardia. Many pulmonary tests--all normal.  I have MVP with trace regurgitation. I have had two Level III cardio pulmonary stress tests--both of which confirmed the cardiac preload failure diagnosis.  Can't count the number of cardiologists, pulmonologists that I've seen.  They all agree that the PFO and MVP aren't the cause or aren't related.  Tilt table showed mild supine hypertension. Have been to rheumatologists, endocronoligsts and neurologists to rule out the usual.  Also had a muscle biopsy to rule out mitochondrial disease.  I have been on calcium channel blockers, several beta blockers (severe reaction to those), nitro, flurinef, midodrine. Many in combination with each other and in combination with exercise programs.  Two with a personal trainers while on flurinef and midodrine. Cardiac rehab while on flurinef and midodrine. Compression hose. Nothing has worked.  Doctors and Mt Sinai, MGH and Brigham and Womens' in Boston haved given up on me.  They won't see me at Mayo Clinic because they said I am 'too complicated'.  (Isn't that why people go there?)

I am 58 yo female in otherwise good health. No family history of heart disease.  I have always had a low energy level but in the last 15-20 years it has become increasingly worse to the point that I may have to give up my job. I can't afford to retire right now. Do I have any hope?
Related Discussions
Post a Comment
To
Top Heart Disease Answerers
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
Avatar_f_tn
Blank
skydnsr
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
63984_tn?1385441539
Blank
Flycaster305
97303, OR
612551_tn?1247839157
Blank
Jerry_NJ
NJ
Avatar_m_tn
Blank
Occupant
IL
MedHelp Health Answers
Blank
BloodPressure Tracker
Monitor Your Blood Pressure
Start Tracking Now
Blank
HeartRhythm Tracker
Track your Heart Condition
Start Tracking Now
Recent Activity
1755089_tn?1376057155
Blank
drewlevas uploaded new photos
39 mins ago
10555961_tn?1411011933
Blank
69_F100_Ranger commented on photo
9 hrs ago
Avatar_f_tn
Blank
Ashkaikyl88 commented on When Your Cold Is Not...
9 hrs ago
Heart Disease Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
233488_tn?1310696703
Blank
New Cannabis Article from NORTH Mag...
Jul 20 by John C Hagan III, MD, FACS, FAAOBlank
Top Heart Disease Answerers
976897_tn?1379171202
Blank
ed34
watford, United Kingdom
Avatar_f_tn
Blank
skydnsr
159619_tn?1318997813
Blank
erijon
Salt Lake City, UT
63984_tn?1385441539
Blank
Flycaster305
97303, OR
612551_tn?1247839157
Blank
Jerry_NJ
NJ
Avatar_m_tn
Blank
Occupant
IL