Hello, After 10 years of trying to get an answer, I finally got a diagnosis of cardiac preload failure, low VOxmax, and decreased AT. I have shortness of breath, palpitations/heart racing, chest pains, fatigue, lightheaded. Many many echos--three with bubbles. A PFO showed up on one. Normal cardiac cath--they couldn't see the PFO during the cath. Normal EKGs. Halters normal except for mild sinus tachycardia. Many pulmonary tests--all normal. I have MVP with trace regurgitation. I have had two Level III cardio pulmonary stress tests--both of which confirmed the cardiac preload failure diagnosis. Can't count the number of cardiologists, pulmonologists that I've seen. They all agree that the PFO and MVP aren't the cause or aren't related. Tilt table showed mild supine hypertension. Have been to rheumatologists, endocronoligsts and neurologists to rule out the usual. Also had a muscle biopsy to rule out mitochondrial disease. I have been on calcium channel blockers, several beta blockers (severe reaction to those), nitro, flurinef, midodrine. Many in combination with each other and in combination with exercise programs. Two with a personal trainers while on flurinef and midodrine. Cardiac rehab while on flurinef and midodrine. Compression hose. Nothing has worked. Doctors and Mt Sinai, MGH and Brigham and Womens' in Boston haved given up on me. They won't see me at Mayo Clinic because they said I am 'too complicated'. (Isn't that why people go there?)
I am 58 yo female in otherwise good health. No family history of heart disease. I have always had a low energy level but in the last 15-20 years it has become increasingly worse to the point that I may have to give up my job. I can't afford to retire right now. Do I have any hope?
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