mvp pain

[gma681]

i have mvp and have pressure in chest (only pain in that area) it comes AND GOES will last for months.  have had stress done evertthing okay What are your thoughts?

[action2154]

I stepped into a Pier one store and the candles literally made my lungs swell and I felt like I could not catch my breath. That Monday I went in to my PCP and got an EKG. It was a little off so I was referred to a Cardiologist who gave me a nuclear stress test. That was just a little off so to be sure he recommended a Heart Cath. During the heart cath he said I was expecting to see a blockage (70%) of an artery but I wasn't expecting this.  He showed me the screen and it showed the dye flowing back into my lungs at which point he went and got another doctor and they agreed - "Severe Mitral Valvle Prolapse".  They sent me to a cardiac surgeon with a copy of the DVD(which I copied) and he agreed with their diagnosis.  He said he would take me in today and operate but he didn't have any opening until Tuesday.  He further stated I was in Congestive Heart failure.  So I prepared for Tuesday.  They had to do one more test - a TEE which is a scope down the throat.  It was suppose to be done at 6:45am with my surgery scheduled for 11am the same day.  The doctor who was to do the TEE wasn't even in the hospital until 10am.  Before they administered the "Amnesia type Drug" I remember the nurse talking with the OR anesthesiologist and arguing "That is the type of sedatives we use for this procedure".  Next thing I remembered I was upstairs and a student nurse was shaving my extremely hairy body. I was 3/4 shaved when the doctor who did the TEE came in and said "Cancel the procedure".  He said his tests showed only Mild MVP.  The surgeon agreed and they instead said that they were going to put a stent in the following week to open the blockageand treat the MVP with drugs. I asked what about my breathing?  Why can't I breath?  They told me to go see my PCP about that.

I personally believe they were covering for each other due to the anesthetics being so close together. They are all from the same cardiologist center but I'm no expert and I'm stuck trusting them and their diagnosis.
The following week the stent went in no problem, shortness of breath my PCP said may be allergy related asthma but I'm still experiencing occassional pain on left side of chest and sometimes its severe. My breathing was treated with Advair and has improved but not 100%.   I'm still tired, having problems with my memory, dizzy and short on breath at the slightest increase in activity. I never have the racing heartbeats that many have talked about on this forum. My family has a history of "Heart Murmers" and no one has had open heart surgery with my oldest brother at 63 and I'm 48.   Right now I'm not sure what to expect or who to trust at this point.  

[kenkeith]

Quote: "i have mvp and have pressure in chest (only pain in that area) it comes AND GOES will last for months.  have had stress done evertthing okay What are your thoughts?"

>>>If you have seriously reduced cardiac output with moderate to severe mitral valve prolapse, you would have fatigue, shortness of breath as well as possible chest pains.  

For some insight, and I'm assuming a stress test rules out ischemia (lack of blood flow to heart cells) from occluded vessels.  An echocardiogram test would provide a visual view of your mitral valve and the doppler software (to see blood flow and analysis) that can determine how serious the MVP. That would be the appropriate test for a valve disorder.

I have moderate to severe mitral valve insuffiency and there is some fatigue ande shortness of breath associated with the condtion with exertion.  Many MVP individuals have MVP without symptoms and the condition never progresses, and because the doctor ordered a stress test indicates the mvp has been ruled out..

Other causes cn be pulmonary embolus (blood clots),  pericarditis (inflammation of fluids that surround the heart and between heart and a sac), the esophagus and reflux esophagitis, etc.

[ed34]

What kind of stress test did you have? was it a nuclear scan? an exercise tolerance test? stress echocardiogram?