The problem is that we live in Europe and we have no specialists here at least not for children!
Well my daughter had just recovered from sepsis the time QTc was prolonged, but it had been a few days since the last antibiotic, could it still had some effect on QTc? Can't remember what antibiotics she had, but there were at least 3 different kind, have to look up the names when I find the papers.
Yes, me and her father have had our QTc intervals measured and they were both normal.
I suggest you contact the SADS foundation and get a recommendation for an EP that is an expert in LQTS - i agree that you need a second opinion and this is who you need your second opinion from (many doctors without much knowledge/experience of LQTS tend to either over or under diagnose The condition).
Was your daughter on any Qtc prolonging medications when her QTc was prolonged?
Have you and your daughters father had your QTc intervals measured? If not, you should have this done ASAP - this will help shed light on the situation and will be recommended by a person with knowledge in this field.
Thanks for answer. No, there is noting else on ecg that adds weight. I have asked about it and the answer was no there isn't.
We did another holter and I just got the answers today saying that now her QTc on holter was on average less then 400 so perfectly normal. Have to get a second opinion asap.
I looked around a bit because I'm not too up on pediatric lqtc. CHOP has some good info on diagnosing and treating. There's more to it than just evaluating the corrected QT interval. I don't think you mentioned any other issues that might be present like T wave abnormalities? From what I read she does seem to be borderline on the QTC range but perhaps there is something else they are seeing on ecg that added weight?