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loop monitor justification

Does anyone out there have a spouse that thinks he has been told by the drs that NOTHING is wrong with your heart.? well this is what mine thinks that two very good EP surgeons in two different cities have told him following the procedures. That is NOT what I heard but I keep hearing there is nothing wrong with your heart it is probably your hormones........from the spouse.  My husband has actually told me that it was inserted just to prove to me that what I think are episodes are really not and he is sorta mean about asking me if I have been using my devise when I feel strange....YIKES I'm onthe verge of loosin it!
A little background on me might help paint a better picture.  For the last three years I have been getting sicker and weaker and just overall loosing my once "do a million things a day" life to so much time in bed and resting and I'm good and fed up with the decline!  it took nepherologists years to diagnose that I had Bartters Syndrome with a Gittlemans morph and secondary hyper-aldosteronism.  for 22 years I had unexplained migrane headaches that sent me to the ER two or three times a month in the last 9 years before they put me on controlled narcotics for 5 years. but as a result of these headaches I had damage from severe dehydration periods and just over three years ago they figured out that the Barters syndrome was causing me to leak potassium and low potassium (3.2 is) gives me a . LOng story short they gave me spironalactone and poof no more low potassium no high aldosterone and best of all no more migranes!  For the record even with the migranes which was what I thought was my only health problem I worked full time running my own tax practice and only missing 3 to4 days a month due to the need for pain meds (hard to do taxes when ur on narcs).  Post spironalactone I thought I had been reborn but it only lasted about 10 months before the palpating heart started.  
Fast forward since the palms I have had vtach recorded at 271 199 193 187 and thirty plus of 175+ all recorded on the portable halter monitor.  PCV's sincopes sinus arthritis sinus tacks and now silvery wavy lines in my periphiel vision in my left eye. To say the least I sound like a job for dr house, but I'm still getting sicker not better.  
I know it has been hard on the spouse and kids but I have not had to change my lifestyle to "veg" untill about 2 months ago.  Truly my spouse thinks its in my head and to my probing question of "why would they insert a loop monitor just to placate me, he responds IDK but they can't find a problem and when am I going to accept this.
I am so tired and just ready to give up on a diagnosis but I came across this site and it sounds like a lot of you had to endure multiple EP's to find the ablatable area and it gives me hope just to know that someone else is out there with similar frustrations.  It feels better just to have put it in writing but re-reading it it seems like writing a book.
I guess I just wanted to vent!
thanks to anyone out there who reads it and has any advise for me
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612551 tn?1450022175
COMMUNITY LEADER
Very good advice posted by "achillea" - a similar though occurred to me when reading - she said it much better than I could have.  Still, I'm a guy, so my support may add something.

Has a beta blocker been tried for the high heart rate?
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Avatar universal
I m so sorry you are going through such a mystifying and difficult situation.  Clearly, you have a problem of diagnosis and treatment, and equally clearly, your significant other is having a hard time dealing with it all.  Unfortunately, this is pretty common, and fairly often, this leads to a breakup.

My own feeling is that marital counseling can be tremendously important in these circumstances.  Your own ill heath would appear to be the matter on tap, but the truth is that in any marriage stressed by illness, the 'well' partner can become exhausted and disillusioned if his/her needs as a normal person, not a health care professional, are not met.

Based on this fact, I would suggest that you and your man try one or two sessions with a family counselor to help everyone to understand what personal issues are at stake.

I know this does not address your particular medical concerns, but there is that other matter underlying it all, and it could be very important as you proceed to search for answers.
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